I have been conscious during my last two seizures and since then I’ve wanted to explain what I feel during the seizures, I just didn’t know how to explain this or if my descriptions would make sense to anybody. But today I found an article, which describes what happens and what people may feel during a seizure. I do not have all of these, but I did find what happens to me during a seizure included.
While experiencing the Aura, or the warning that a seizure is coming, I have weird feelings that this has happened before and memories that just won’t get out of my head. When I notice that these are weird thoughts, I can’t get these out of my head. Then I start feeling a little lightheaded.
The first two years after I was diagnosed, I blacked out. I didn’t know when I was going to have a seizure, or remember anything during the seizure. Now I kind of hear things but I can’t answer, and my vision is kind of blurry. I remember me thinking, when will the seizure end? But I can’t speak, or answer the people who are with me. I remember tremors in my legs and I think my arms too. I remember my legs because I could see my right leg moving, but my arms were tired after.
When the tremors end, I just lay there. I am just tired, when I can get up and talk, I’m just tired and I can’t speak very well at first, it takes a few minutes. My thoughts also take a few minutes to make sense again.
I know what happens to me during a seizure, but I don’t want it to happen again. I’ve had it under control for almost five months now. Since I was diagnosed, the longest I have had it under control was 4 months, but I am very positive that my neurologist has found a way to control it with my current medications. Quitting Diet Coke may have also helped.
I have a good feeling that we have put an end to this.

Gracias por explicarnos, nos ayudas a entender mejor. Qué ya lo puedas poner en palabras es bien importante para los que te acompañamos.
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Thank you!!!
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I can totally relate to what you feel. You are a brave, smart , admirable young woman. Never give up!
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Do you feel the same thing?
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