November is an important month, not because the holiday season starts soon or because we eat turkey, because it's epilepsy awareness month. There are a lot of activities happening around the world to teach people about epilepsy and to help people who suffer from it. I want to welcome November, like I always do, offering … Continue reading Epilepsy Awareness Month
This is the best way to show how angry I was six years ago, while I was still in the first stages of my recovery and I saw no way out. There were dark moments, like when I wrote this status update, when I would hit rock bottom, I was angry and would take it … Continue reading I’m just happy to be ok
Every time I visit a doctor I want to give him or her good news, to show them that their treatment is working. It was no different this morning when I went to see my neurologist for my routine 6 month appointment. I had nothing but good news to tell him: 1) still seizure free … Continue reading The neurologist and the cleaning
Now that my new kitchen is almost ready, I have to start getting used to cooking again. As I’ve mentioned before, using the stove or oven was prohibited for me after the accident because of the epilepsy. Also, I don't want to think about what would have happened if I ever left the stove or … Continue reading Cooking in MY kitchen
I have absolutely no idea how this morning I forgot the most important thing I have to do every morning. I would kick myself if I could right now. I didn't realize that I screwed up until 8:00 PM, when I was taking my nightly doze of Keppra and Vimpat, my epilepsy medicine, that I … Continue reading How could I forget?
Three years seizure free!!! This third year is just a little bit sweeter than last year was just because there were a few moment which I thought would ruin it. Throughout both hurricanes and afterwards I was so terrified and nervous of having another seizure because I was worried about so many things. I was … Continue reading Three years!!!!!!!!!!
I found an article that talks about what may cause memory loss in epilepsy. I went through this for the first three years of my epilepsy, not even being aware when I had a seizure. I know that a lot of us loose memory of the seizure, before during and sometimes after. Epilepsy study links … Continue reading Memory loss in epilepsy
Don't forget to take a look at my pages for articles on Epilepsy and TBI. I am constantly looking for new and interesting articles to share. Hope you enjoy them! Pages- TBI Epilepsy
After learning about Embrace, the epilepsy smart watch, I saw there was an app similar to that for the Apple Watch. Since then I have been looking for the app, and finally found it as well as many others for iPhone. The 10 best epilepsy apps They sound great but they remind me of that … Continue reading SeizAlarm and other seizure and epilepsy alarm apps
My bad, I didn’t give November the welcome it deserves being a very important month. No, I’m not talking about thanksgiving, I’m talking about Epilepsy Awareness Month. This doesn’t mean that we need to take extra care of our epilepsy, we have to do that all year, but share our knowledge and news about epilepsy. … Continue reading Epilepsy Awareness Month 2017
This morning I had an appointment with my neurologist to discuss those episodes I have had and the result of the EEG. I'll be honest with you, I was terrified that he would say they found something weird in my brain activity meaning he would need to increase the epilepsy medication dose and I was … Continue reading EEG results are in
Like I said yesterday, today I was getting an EEG. I had 24 electrodes glued and taped to my head. These are all connected to a recorder that I'm have to carry around like a purse, except it's not really that cute. Each of the cables from the electrodes is a different color and that's … Continue reading Electroencephalogram
I want to stay as informed as I can about epilepsy, living with epilepsy for five years now, but some of the information can be a little scary, sometimes true, but other times scary. I was just reading about the growing number of people with epilepsy (Number of People with Epilepsy in the United States … Continue reading Scary news about epilepsy
After reading Becoming Comfortable with "My" Epilepsy: Strategies that Patients Use in the Journey from Diagnosis to Acceptance and Disclosure I think it's important to recognize that first, epilepsy is not an easy thing to deal with and that we all have different methods of coping with it. The first time I remember being told … Continue reading The first time I heard I have epilepsy
Engineers are developing hardware that could predict and help prevent epileptic seizures through a seizure-prediction algorithm. Using these algorithms, the hardware would send signals to the electrodes in the brain predicting seizures in real time and apply electrical stimulation, preventing the seizures. I still can't believe they were able to come up with this and that … Continue reading Seizure prediction hardware