Epilepsy Day 2019

I know It was yesterday but it's never to late to try to raise awareness, especially for something as important to me as epilepsy. So this year I would like to share this quiz, which I was very surprised and happy to see BuzzFeed taking a part in Epilepsy Day. What do you know about … Continue reading Epilepsy Day 2019

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It has been a very long time since I’ve read a book so captivating

Yesterday I realized that for the first time I missed an appointment with my neurologist earlier this month. I still don't understand how that could happen, those appointments are the most important ones, at least for me. I'm still wondering why they didn't call me from his office to confirm the day before like they … Continue reading It has been a very long time since I’ve read a book so captivating

Last post of 2018

As we wait anxiously for the end of 2018 and celebrate the beginning of 2019, I was feeling positive and excited for this new beginning. I was baking brownies for everyone when I couldn't answer what I was being asked. I understood the question, it was how long We had to bake the brownies but … Continue reading Last post of 2018

Epilepsy Awareness Month

November is an important month, not because the holiday season starts soon or because we eat turkey, because it's epilepsy awareness month. There are a lot of activities happening around the world to teach people about epilepsy and to help people who suffer from it. I want to welcome November, like I always do, offering … Continue reading Epilepsy Awareness Month

I’m just happy to be ok

This is the best way to show how angry I was six years ago, while I was still in the first stages of my recovery and I saw no way out. There were dark moments, like when I wrote this status update, when I would hit rock bottom, I was angry and would take it … Continue reading I’m just happy to be ok

The neurologist and the cleaning

Every time I visit a doctor I want to give him or her good news, to show them that their treatment is working. It was no different this morning when I went to see my neurologist for my routine 6 month appointment. I had nothing but good news to tell him: 1) still seizure free … Continue reading The neurologist and the cleaning

Cooking in MY kitchen

Now that my new kitchen is almost ready, I have to start getting used to cooking again. As I’ve mentioned before, using the stove or oven was prohibited for me after the accident because of the epilepsy. Also, I don't want to think about what would have happened if I ever left the stove or … Continue reading Cooking in MY kitchen

How could I forget?

I have absolutely no idea how this morning I forgot the most important thing I have to do every morning. I would kick myself if I could right now. I didn't realize that I screwed up until 8:00 PM, when I was taking my nightly doze of Keppra and Vimpat, my epilepsy medicine, that I … Continue reading How could I forget?

Three years!!!!!!!!!!

Three years seizure free!!! This third year is just a little bit sweeter than last year was just because there were a few moment which I thought  would ruin it. Throughout both hurricanes and afterwards I was so terrified and nervous of having another seizure because I was worried about so many things. I was … Continue reading Three years!!!!!!!!!!

Memory loss in epilepsy

I found an article that talks about what may cause memory loss in epilepsy. I went through this for the first three years of my epilepsy, not even being aware when I had a seizure. I know that a lot of us loose memory of the seizure, before during and sometimes after. Epilepsy study links … Continue reading Memory loss in epilepsy

SeizAlarm and other seizure and epilepsy alarm apps

After learning about Embrace, the epilepsy smart watch, I saw there was an app similar to that for the Apple Watch. Since then I have been looking for the app, and finally found it as well as many others for iPhone. The 10 best epilepsy apps They sound great but they remind me of that … Continue reading SeizAlarm and other seizure and epilepsy alarm apps

Epilepsy Awareness Month 2017

My bad, I didn’t give November the welcome it deserves being a very important month. No, I’m not talking about thanksgiving, I’m talking about Epilepsy Awareness Month.  This doesn’t mean that we need to take extra care of our epilepsy, we have to do that all year, but share our knowledge and news about epilepsy. … Continue reading Epilepsy Awareness Month 2017

EEG results are in

This morning I had an appointment with my neurologist to discuss those episodes I have had and the result of the EEG. I'll be honest with you, I was terrified that he would say they found something weird in my brain activity meaning he would need to increase the epilepsy medication dose and I was … Continue reading EEG results are in

Electroencephalogram

Like I said yesterday, today I was getting an EEG. I had 24 electrodes glued and taped to my head. These are all connected to a recorder that I'm have to carry around like a purse, except it's not really that cute. Each of the cables from the electrodes is a different color and that's … Continue reading Electroencephalogram