This morning I woke up earlier than usual, even though I had a long day at work because today I had an appointment with my neurologist. It was just a routine checkup, to let him know how everything is going and of course I was very proud to tell him that, if everything keeps going … Continue reading Almost there!
It's March again and you know what that means? Brain Injury Awareness Month. Every year different organizations have different campaigns to celebrate this month, like #ChangeYourMind from the Brain Injury Association of America or the best one I've seen so far #notinvisible. This campaign is being used by Faces of TBI, a movement started by … Continue reading Brain Injury Awareness Month 2019
I was very happy to learn that a hospital here in Puerto Rico, Manatí Medical Center, just opened a comprehensive epilepsy unit in an effort to provide reach patients al over the island. Crean unidad comprensiva de epilepsia para pacientes puertorriqueños As the article says, the goal of the center is to monitor, diagnose and … Continue reading Comprehensive Epilepsy Unit
Yesterday I realized that for the first time I missed an appointment with my neurologist earlier this month. I still don't understand how that could happen, those appointments are the most important ones, at least for me. I'm still wondering why they didn't call me from his office to confirm the day before like they … Continue reading It has been a very long time since I’ve read a book so captivating
November is an important month, not because the holiday season starts soon or because we eat turkey, because it's epilepsy awareness month. There are a lot of activities happening around the world to teach people about epilepsy and to help people who suffer from it. I want to welcome November, like I always do, offering … Continue reading Epilepsy Awareness Month
As you probably know, there are a few hurricanes lurking around, deciding where they want to attack. We are hoping and praying that nothing comes even close to Puerto Rico because, apart from the fact that no one over likes hurricanes, we are not ready for another one. We still have not recovered from Maria … Continue reading Oh my Vimpat and Keppra
Every time I visit a doctor I want to give him or her good news, to show them that their treatment is working. It was no different this morning when I went to see my neurologist for my routine 6 month appointment. I had nothing but good news to tell him: 1) still seizure free … Continue reading The neurologist and the cleaning
Check this out: Stanford researchers listen for silent seizures with "brain stethoscope" that turns brain waves into sound This is an article about this pretty awesome thing neurologists at Stanford are developing that allows doctors and nurses to hear a seizure. It's like an EEG but instead, except EEGs can't always read every seizure because not … Continue reading The “brain stethoscope”
Three years seizure free!!! This third year is just a little bit sweeter than last year was just because there were a few moment which I thought would ruin it. Throughout both hurricanes and afterwards I was so terrified and nervous of having another seizure because I was worried about so many things. I was … Continue reading Three years!!!!!!!!!!
This week, being the week before Easter, I thought I would be able to rest and relax. I was hoping to go to the beach, the movies and maybe even have a lazy day just staying home all day. The week didn't turn out this way. Begging with having to go get blood drawn on … Continue reading Easter break
I just realized today that I have an appointment with my neurologist in two weeks. My first thought was "this is great, I'm still seizure free", but then I remembered that last time I saw my neurologist he asked me why I wasn't driving yet and seemed disappointed in me. That was back in August … Continue reading Reminders
My electroencephalogram was removed today. This process, just like gluing it to my head yesterday, didn't hurt one bit but it was a lot faster. I'm not sure what the technician put on my hair to make it all come out, but my head was really sticky, like I had way too much hair gel. … Continue reading After the EEG
Like I said yesterday, today I was getting an EEG. I had 24 electrodes glued and taped to my head. These are all connected to a recorder that I'm have to carry around like a purse, except it's not really that cute. Each of the cables from the electrodes is a different color and that's … Continue reading Electroencephalogram
Tomorrow I will have electrodes placed on my scalp to read electrical signals in my brain. It sounds weird and it is, but it's for a good cause. It's an EEG to find out if those weird episodes I had when I couldn't find the right word are seizures. I had this done before in … Continue reading Another EEG
I was reading a little bit about different kinds of seizures, trying to see if those episodes I have had could have been a seizure. It's just for my curiosity because I will know after I get the results from my EEG on the 24th. I thought it might have been an Absence Seizure, also … Continue reading Trying to understand those episodes