They day finally came, I was able to get my hand on Lacosamide or generic Vimpat, here in Puerto Rico. First of all, I would like to acknowledge my mom’s genius mind for suggesting we try Sam’s Club pharmacy instead of Walgreens, where they kept telling us it wasn’t available in Puerto Rico yet. When … Continue reading I got Lacosamide in Puerto Rico!
As of yesterday, April 8, 2022, I am officially seven years seizure free! I didn’t have time to write a celebratory blog post like I do every year but that doesn’t mean I was not happy of telling everyone I could about it. I almost thought I didn’t make it earlier this week when because … Continue reading 7 years seizure free!
I got my EEG results today. I wanted the results to show that there was absolutely no seizure activity anymore so I could be taken off the anti seizure medication. I knew that wasn’t going to happen so I just hoped for something more realistic like it not getting worse. The EEG showed just that; … Continue reading EEG results- Still seizure free!
I was forced to take a day off of PiYo for an EEG today. This is the 24 hour test where 24 electrodes are placed on my head for 24 hours to track and record brain wave patterns. The abnormal patterns show problems,which in my case are seizures. I always dread having this done, but … Continue reading Tracking my brain wave patterns for 24 hours
In March I got the big surprise that the pharmacy that had been providing me with both anti epilepsy medication for the past six years, would no longer be able to help me with the most expensive one of the two medicines I need. Why? Because suddenly my health insurance decided to provide coverage for … Continue reading I couldn’t afford to control my seizures anymore
This morning I had an appointment with my neurologist over the phone. I was anxiously waiting for this appointment because today he would give me the results of the EEG I had in December. He didn’t mention anything at first, which I was sure was a good sign, but I still wanted to know so … Continue reading Five years seizure free!
Early this morning I had another appointment at the neurologist, this time it was to have the EEG removed from my head. I was more than happy to go, to not have anything glued to my head or cables running down my back from my head to a bag. After everything was removed I was … Continue reading I could do it all!
When my neurologist tells me I need to get another electroencephalogram, I feel a little anxious. I don’t like the thought of having cables glued to my scalp for a whole day and not being able to do anything but stay home, anyway I have to get the EEG. They use this to detect electrical … Continue reading My latest electroencephalogram
It's Christmas! It's finally here, the happiest tone of the year! There's lights, music, parties, family, friends, and food, a lot of food. But there is also pressure to be at all the parties, to host some of them, to make or bring food, to give presents, to talk to everyone at the party and … Continue reading How to survive and enjoy the holiday season
Well, this will make my Christmas a lot more interesting and a little stressful. I had not done anything after my neurologist told me to start practicing again a few weeks ago, but I just god behind the wheel before coming home a couple of hours ago. I was a little nervous because it was … Continue reading Merry Christmas, I just started driving again!
My second annual appointment with the neurologist was today. I'm always exited for these because I always have good news and he's always very happy about how well I'm doing, but today, the tables were turned. I was doing very well, he was asking about my driving and it was decided that I would practice … Continue reading Slowly start again
Yesterday I went to see my neurologist but it was just a routine appointment. Like always he was happy to hear that nothing has happened, no seizures. I did have to talk to him about an incident I had last night with my pills. I keep all ten of them in a weekly pill container … Continue reading Medications and hot weather
This morning I woke up earlier than usual, even though I had a long day at work because today I had an appointment with my neurologist. It was just a routine checkup, to let him know how everything is going and of course I was very proud to tell him that, if everything keeps going … Continue reading Almost there!
It's March again and you know what that means? Brain Injury Awareness Month. Every year different organizations have different campaigns to celebrate this month, like #ChangeYourMind from the Brain Injury Association of America or the best one I've seen so far #notinvisible. This campaign is being used by Faces of TBI, a movement started by … Continue reading Brain Injury Awareness Month 2019
I was very happy to learn that a hospital here in Puerto Rico, Manatí Medical Center, just opened a comprehensive epilepsy unit in an effort to provide reach patients al over the island. Crean unidad comprensiva de epilepsia para pacientes puertorriqueños As the article says, the goal of the center is to monitor, diagnose and … Continue reading Comprehensive Epilepsy Unit