Three years!!!!!!!!!!

Three years seizure free!!! This third year is just a little bit sweeter than last year was just because there were a few moment which I thought  would ruin it. Throughout both hurricanes and afterwards I was so terrified and nervous of having another seizure because I was worried about so many things. I was … Continue reading Three years!!!!!!!!!!

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Easter break

This week, being the week before Easter, I thought I would be able to rest and relax. I was hoping to go to the beach, the movies and maybe even have a lazy day just staying home all day. The week didn't turn out this way. Begging with having to go get blood drawn on … Continue reading Easter break

Memory loss in epilepsy

I found an article that talks about what may cause memory loss in epilepsy. I went through this for the first three years of my epilepsy, not even being aware when I had a seizure. I know that a lot of us loose memory of the seizure, before during and sometimes after. Epilepsy study links … Continue reading Memory loss in epilepsy

I think I’m sleeping too much

Sleeping has always been my favorite pass time but I thought this all changed after the accident, having to wake up at 8:00 a.m. every day to take my epilepsy medicine. I was sure this was one of the many things the accident had taken away from me, especially since I am forced to wake … Continue reading I think I’m sleeping too much

Happy #EpilepsyDay 2018!

Today, International Epilepsy Day, I had my first appointment of 2018 with my neurologist. Epilepsy Day is celebrated on the second Monday of February to celebrate the strength of those affected by epilepsy and raise awareness. Apart from talking about the blackout we had last night where about six towns lost power because of an … Continue reading Happy #EpilepsyDay 2018!

SeizAlarm and other seizure and epilepsy alarm apps

After learning about Embrace, the epilepsy smart watch, I saw there was an app similar to that for the Apple Watch. Since then I have been looking for the app, and finally found it as well as many others for iPhone. The 10 best epilepsy apps They sound great but they remind me of that … Continue reading SeizAlarm and other seizure and epilepsy alarm apps

Embrace smart watch: seizure tracking and epilepsy management

There's a new smartwatch on the market called Embrace smart watch. The thing that makes this watch different from other smart watches and caught my attention is that it tracks seizures. This new watch which has just been cleared by the FDA, has been tested on patients and collected over 6530 hours of data, during … Continue reading Embrace smart watch: seizure tracking and epilepsy management

Reminders

I just realized today that I have an appointment with my neurologist in two weeks. My first thought was "this is great, I'm still seizure free",  but then I remembered that last time I saw my neurologist he asked me why I wasn't driving yet and seemed disappointed in me. That was back in August … Continue reading Reminders

Side effects

I try to stay active everyday, working out in the morning before doing anything else during the week. This just helps wake me up, at least it does some days. Other days, like today, I wake up tired; I sleep nine hours and I wake up tired. Then I wash my face, have breakfast, workout, … Continue reading Side effects

Folic Acid Awareness

When my neurologist prescribed the epilepsy medicine I should take he also spoke to us about me taking some supplements. At the moment I didn't remember the reasons for which I had to take the supplements but my mother agreed with the doctor and I had no reason to doubt my neurologist. They told me … Continue reading Folic Acid Awareness

They don’t need to know

I keep saying I am so open about my brain injury and I usually am but lately I feel like I don't have to give everyone so many details. Like telling the kids I tutor; I don't really need to tell them, they're kids and I feel like that's just too much information. Today I … Continue reading They don’t need to know

Tips for the holidays

The best part of the holiday season is, for many of us, spending time with our family and friends. This time full of parties and other gatherings with friends and family may be difficult for TBI survivors, I mean so many people and so much noise can get a little difficult, at least for me. … Continue reading Tips for the holidays

Start the conversation

Having epilepsy is not easy, but I have learned that I have to be brave when talking about it, I have to bring it up and I have to tell people. I bring it up and I'm not afraid to because that's just a part of my new normal, living with epilepsy. I know people … Continue reading Start the conversation

My Shot at Epilepsy

"My Shot at Epilepsy" is this year's challenge to raise money for Epilepsy Awareness month. Participants are asked to take a picture or video of themselves in "My shot pose" (arm raised in the air, index finger pointing up), making a donation to MyShotAtEpilepsy .org and sharing it on social media, tagging friends to donate … Continue reading My Shot at Epilepsy