In March I got the big surprise that the pharmacy that had been providing me with both anti epilepsy medication for the past six years, would no longer be able to help me with the most expensive one of the two medicines I need. Why? Because suddenly my health insurance decided to provide coverage for … Continue reading I couldn’t afford to control my seizures anymore
Today marks nine years since my TBI. Some say it’s kind of my birthday but I’m not sure that’s what it is; it caused a new beginning, that’s for sure, but I don’t feel like it’s appropriate to say it’s birthday. Birth is a happy moment and there was nothing happy about this day nine … Continue reading Nine years
Yesterday I get a bombshell dropped on me, the pharmaceutical company that has been providing me my epilepsy medicine for over four years won’t cover my most expensive medicine anymore.
This morning I had an appointment with my neurologist over the phone. I was anxiously waiting for this appointment because today he would give me the results of the EEG I had in December. He didn’t mention anything at first, which I was sure was a good sign, but I still wanted to know so … Continue reading Five years seizure free!
Early this morning I had another appointment at the neurologist, this time it was to have the EEG removed from my head. I was more than happy to go, to not have anything glued to my head or cables running down my back from my head to a bag. After everything was removed I was … Continue reading I could do it all!
I have been dealing with the quarantine pretty well. I don’t really mind, as I’ve said before. I have been exercising, working a little bit, cooking and I’ve done all of this without being rushed. But I started to feel a little anxiety last week when I noticed I was falling asleep later every night. … Continue reading Quarantine sleep anxiety
I made it another year! I’m five years seizure free! This would be a great reason to go out for dinner to celebrate and we have on past years but sadly we can’t this year. The best and safest way to celebrate is staying home but this doesn’t stop me from being incredibly happy! Five … Continue reading 5 years seizure free!
When I first heard of the Coronavirus spread, the first question I had was if it would increase my risk of seizures, if it would cause one, even while I'm on medication or if it increased the risk of coronavirus. People with epilepsy are not immunocompromised so it does not put us at a higher … Continue reading Epilepsy and COVID-19
It's Christmas! It's finally here, the happiest tone of the year! There's lights, music, parties, family, friends, and food, a lot of food. But there is also pressure to be at all the parties, to host some of them, to make or bring food, to give presents, to talk to everyone at the party and … Continue reading How to survive and enjoy the holiday season
My second annual appointment with the neurologist was today. I'm always exited for these because I always have good news and he's always very happy about how well I'm doing, but today, the tables were turned. I was doing very well, he was asking about my driving and it was decided that I would practice … Continue reading Slowly start again
November is finally here and this means we're one month closer to Christmas, we celebrate Thanksgiving and last but not least, it's Epilepsy Awareness Month. during which the goal is to educate others on #SeizureFirstAid. Instead of talking about how exited I am for the holiday season and to start putting up my Christmas decorations, … Continue reading #StaySafeSide
Today I found the description I wrote four years ago of a seizure. https://unstoppablemaria.com/2015/08/13/if-i-cant-speak-im-tired-everything-hurts-and-i-dont-understand-why-it-means-i-had-a-seizure/ This was the first time I was able to put into words what it was like having and what happens during seizure . Yes, that seizure is the only one I remember but I still don't know why I was able … Continue reading What happened during a seizure
Yesterday I went to see my neurologist but it was just a routine appointment. Like always he was happy to hear that nothing has happened, no seizures. I did have to talk to him about an incident I had last night with my pills. I keep all ten of them in a weekly pill container … Continue reading Medications and hot weather
I didn't think about it, but writing this brings a lot of old feelings back. I can't help but look back at the last seven years of my life, at least what I can remember of them and the worst moments come to mind. From that very first memory that always makes me sad and … Continue reading Seven years later…
I can finally say it, I am four years seizure free! Thanks mostly to my wonderful neurologist for finding the right medication, keeping me on it, Sonexus Health Pharmacy for helping me get the medicine, and everyone around me for making sure I have my medicine. It's just incredible, literally, I can't believe I've made … Continue reading Four Years Seizure Free!