Ten years after my TBI

My TBI was officially one decade ago. When I think about it like that, a whole decade, it seems like an eternity but 10 years is a long time, even if sometime it may not seem that way. A lot has happened during these last ten years, not just my recovery. Ten years ago, I … Continue reading Ten years after my TBI

7 years seizure free!

As of yesterday, April 8, 2022, I am officially seven years seizure free! I didn’t have time to write a celebratory blog post like I do every year but that doesn’t mean I was not happy of telling everyone I could about it. I almost thought I didn’t make it earlier this week when because … Continue reading 7 years seizure free!

Lacomaside (Generic Vimpat) was approved by the FDA

The FDA just approved the sale of lacosamide tablets, which is the generic name for the anti-seizure medication, Vimpat. This is the medication that finally controlled my seizures and the one that I had trouble getting because of its cost. I hope that now that the FDA approved the sale of lacosamide it will be … Continue reading Lacomaside (Generic Vimpat) was approved by the FDA

EEG results- Still seizure free!

I got my EEG results today. I wanted the results to show that there was absolutely no seizure activity anymore so I could be taken off the anti seizure medication. I knew that wasn’t going to happen so I just hoped for something more realistic like it not getting worse. The EEG showed just that; … Continue reading EEG results- Still seizure free!

Tracking my brain wave patterns for 24 hours

I was forced to take a day off of PiYo for an EEG today. This is the 24 hour test where 24 electrodes are placed on my head for 24 hours to track and record brain wave patterns. The abnormal patterns show problems,which in my case are seizures. I always dread having this done, but … Continue reading Tracking my brain wave patterns for 24 hours

I had to leave, it just wasn’t worth it

This weekend I had to come to a decision to quit my job at Old Navy. It may seem a bit drastic to quit after not even two months or that I gave up too easy, but I assure you neither of those are true. I do not hold anything against the company, it just … Continue reading I had to leave, it just wasn’t worth it

Epilepsy and Osteoporosis

This is for my fellow epilepsy warriors, just in case you didn’t know, like me, People with epilepsy are at higher risk than other people for developing osteoporosis and fractures. The Epilepsy Foundation also mentions that women have a higher risk of developing osteoporosis (and therefore broken bones) than men and people on multiple antiseizure … Continue reading Epilepsy and Osteoporosis

Seizure First Aid Ready

I just found the best online certification that I want all my family and friends to get, just in case. This free, online certificate is a 30 minute course that “educates the public on the Epilepsy Foundation’s basic procedures for responding to someone having a seizure.” If you complete the course you receive a certificate … Continue reading Seizure First Aid Ready

I couldn’t afford to control my seizures anymore

In March I got the big surprise that the pharmacy that had been providing me with both anti epilepsy medication for the past six years, would no longer be able to help me with the most expensive one of the two medicines I need. Why? Because suddenly my health insurance decided to provide coverage for … Continue reading I couldn’t afford to control my seizures anymore

Nine years

Today marks nine years since my TBI. Some say it’s kind of my birthday but I’m not sure that’s what it is; it caused a new beginning, that’s for sure, but I don’t feel like it’s appropriate to say it’s birthday. Birth is a happy moment and there was nothing happy about this day nine … Continue reading Nine years

Five years seizure free!

This morning I had an appointment with my neurologist over the phone. I was anxiously waiting for this appointment because today he would give me the results of the EEG I had in December. He didn’t mention anything at first, which I was sure was a good sign, but I still wanted to know so … Continue reading Five years seizure free!

I could do it all!

Early this morning I had another appointment at the neurologist, this time it was to have the EEG removed from my head. I was more than happy to go, to not have anything glued to my head or cables running down my back from my head to a bag. After everything was removed I was … Continue reading I could do it all!

Quarantine sleep anxiety

I have been dealing with the quarantine pretty well. I don’t really mind, as I’ve said before. I have been exercising, working a little bit, cooking and I’ve done all of this without being rushed. But I started to feel a little anxiety last week when I noticed I was falling asleep later every night. … Continue reading Quarantine sleep anxiety