February 13, 2023 is International Epilepsy Day, a day that provides “a platform for people with epilepsy to share their experiences and stories with a global audience.” This is important because epilepsy is “one of the world’s oldest known medical conditions”, there is still misunderstanding, fear, and reluctance to learn and talk about it. This … Continue reading International Epilepsy Day 2023
Tag: epilepsy
I went for my first appointment of the year with my neurologist. I always like to go with someone in case he says something that I need to remember, gives me instructions or anything that someone else needs or should hear in case I forget. Today had to go by myself and I was a … Continue reading Big milestone at the neurologist
Ten years ago today was the third and last surgery on my cranium after the accident I was in nine months before in May. Even though it has been a decade, I still remember how terrified I was during the days before and the day of the operation. I remember still being awake as the … Continue reading September 21, 2012
I thought everything was perfect as long as I took my anti convulsive medications, didn’t drink alcohol and slept eight hours every night. I forgot that I shouldn’t gain weight, at least not too much. Gaining weight affects my medication levels; if they are too low it could lead to a seizure. I have only … Continue reading More workouts and no more snacking
They day finally came, I was able to get my hand on Lacosamide or generic Vimpat, here in Puerto Rico. First of all, I would like to acknowledge my mom’s genius mind for suggesting we try Sam’s Club pharmacy instead of Walgreens, where they kept telling us it wasn’t available in Puerto Rico yet. When … Continue reading I got Lacosamide in Puerto Rico!
My TBI was officially one decade ago. When I think about it like that, a whole decade, it seems like an eternity but 10 years is a long time, even if sometime it may not seem that way. A lot has happened during these last ten years, not just my recovery. Ten years ago, I … Continue reading Ten years after my TBI
As of yesterday, April 8, 2022, I am officially seven years seizure free! I didn’t have time to write a celebratory blog post like I do every year but that doesn’t mean I was not happy of telling everyone I could about it. I almost thought I didn’t make it earlier this week when because … Continue reading 7 years seizure free!
The FDA just approved the sale of lacosamide tablets, which is the generic name for the anti-seizure medication, Vimpat. This is the medication that finally controlled my seizures and the one that I had trouble getting because of its cost. I hope that now that the FDA approved the sale of lacosamide it will be … Continue reading Lacomaside (Generic Vimpat) was approved by the FDA
I got my EEG results today. I wanted the results to show that there was absolutely no seizure activity anymore so I could be taken off the anti seizure medication. I knew that wasn’t going to happen so I just hoped for something more realistic like it not getting worse. The EEG showed just that; … Continue reading EEG results- Still seizure free!
I was forced to take a day off of PiYo for an EEG today. This is the 24 hour test where 24 electrodes are placed on my head for 24 hours to track and record brain wave patterns. The abnormal patterns show problems,which in my case are seizures. I always dread having this done, but … Continue reading Tracking my brain wave patterns for 24 hours
This weekend I had to come to a decision to quit my job at Old Navy. It may seem a bit drastic to quit after not even two months or that I gave up too easy, but I assure you neither of those are true. I do not hold anything against the company, it just … Continue reading I had to leave, it just wasn’t worth it
This is for my fellow epilepsy warriors, just in case you didn’t know, like me, People with epilepsy are at higher risk than other people for developing osteoporosis and fractures. The Epilepsy Foundation also mentions that women have a higher risk of developing osteoporosis (and therefore broken bones) than men and people on multiple antiseizure … Continue reading Epilepsy and Osteoporosis
I just found the best online certification that I want all my family and friends to get, just in case. This free, online certificate is a 30 minute course that “educates the public on the Epilepsy Foundation’s basic procedures for responding to someone having a seizure.” If you complete the course you receive a certificate … Continue reading Seizure First Aid Ready
In March I got the big surprise that the pharmacy that had been providing me with both anti epilepsy medication for the past six years, would no longer be able to help me with the most expensive one of the two medicines I need. Why? Because suddenly my health insurance decided to provide coverage for … Continue reading I couldn’t afford to control my seizures anymore
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