The neurologist and the cleaning

Every time I visit a doctor I want to give him or her good news, to show them that their treatment is working. It was no different this morning when I went to see my neurologist for my routine 6 month appointment. I had nothing but good news to tell him: 1) still seizure free … Continue reading The neurologist and the cleaning

Advertisements

Cooking in MY kitchen

Now that my new kitchen is almost ready, I have to start getting used to cooking again. As I’ve mentioned before, using the stove or oven was prohibited for me after the accident because of the epilepsy. Also, I don't want to think about what would have happened if I ever left the stove or … Continue reading Cooking in MY kitchen

How could I forget?

I have absolutely no idea how this morning I forgot the most important thing I have to do every morning. I would kick myself if I could right now. I didn't realize that I screwed up until 8:00 PM, when I was taking my nightly doze of Keppra and Vimpat, my epilepsy medicine, that I … Continue reading How could I forget?

Two days of independence

This weekend I was finally trusted to spend two nights at home by myself. It wasn't safe for me to stay alone before in case I had a seizure, but being over three years seizure free, I earned the trust to spend a weekend by myself. I wasn't alone, I had my dogs. I spent … Continue reading Two days of independence

The “brain stethoscope”

Check this out: Stanford researchers listen for silent seizures with "brain stethoscope" that turns brain waves into sound This is an article about this pretty awesome thing neurologists at Stanford are developing that allows doctors and nurses to hear a seizure. It's like an EEG but instead, except EEGs can't always read every seizure because not … Continue reading The “brain stethoscope”

Get support and give support

I think one of the many things that can help you heal from whatever situation you're going through is charing your experience and talking to other people. You never know how many others are out there going through the same thing and are ready to share their experience with you and help. I was reminded … Continue reading Get support and give support

Three years!!!!!!!!!!

Three years seizure free!!! This third year is just a little bit sweeter than last year was just because there were a few moment which I thought  would ruin it. Throughout both hurricanes and afterwards I was so terrified and nervous of having another seizure because I was worried about so many things. I was … Continue reading Three years!!!!!!!!!!

Easter break

This week, being the week before Easter, I thought I would be able to rest and relax. I was hoping to go to the beach, the movies and maybe even have a lazy day just staying home all day. The week didn't turn out this way. Begging with having to go get blood drawn on … Continue reading Easter break

Memory loss in epilepsy

I found an article that talks about what may cause memory loss in epilepsy. I went through this for the first three years of my epilepsy, not even being aware when I had a seizure. I know that a lot of us loose memory of the seizure, before during and sometimes after. Epilepsy study links … Continue reading Memory loss in epilepsy

I think I’m sleeping too much

Sleeping has always been my favorite pass time but I thought this all changed after the accident, having to wake up at 8:00 a.m. every day to take my epilepsy medicine. I was sure this was one of the many things the accident had taken away from me, especially since I am forced to wake … Continue reading I think I’m sleeping too much

Happy #EpilepsyDay 2018!

Today, International Epilepsy Day, I had my first appointment of 2018 with my neurologist. Epilepsy Day is celebrated on the second Monday of February to celebrate the strength of those affected by epilepsy and raise awareness. Apart from talking about the blackout we had last night where about six towns lost power because of an … Continue reading Happy #EpilepsyDay 2018!

SeizAlarm and other seizure and epilepsy alarm apps

After learning about Embrace, the epilepsy smart watch, I saw there was an app similar to that for the Apple Watch. Since then I have been looking for the app, and finally found it as well as many others for iPhone. The 10 best epilepsy apps They sound great but they remind me of that … Continue reading SeizAlarm and other seizure and epilepsy alarm apps

Embrace smart watch: seizure tracking and epilepsy management

There's a new smartwatch on the market called Embrace smart watch. The thing that makes this watch different from other smart watches and caught my attention is that it tracks seizures. This new watch which has just been cleared by the FDA, has been tested on patients and collected over 6530 hours of data, during … Continue reading Embrace smart watch: seizure tracking and epilepsy management

Reminders

I just realized today that I have an appointment with my neurologist in two weeks. My first thought was "this is great, I'm still seizure free",  but then I remembered that last time I saw my neurologist he asked me why I wasn't driving yet and seemed disappointed in me. That was back in August … Continue reading Reminders