Even though my seizures are controlled and reading about this really scares me, it’s SUDEP Awareness Day and I feel strongly about this and all things related to Epilepsy.
So, what is SUDEP and why is there awareness?
SUDEP is the sudden, unexpected death of someone with epilepsy. This can be the cause of death for epilepsy patients with uncontrolled seizures. We always need to take our medicine to keep our epilepsy under control. We cannot say “I don’t want to take my medicine today” or “I forgot”. I cannot say “it’s been six months, I don’t have to take them”.
In most of the cases, people are found laying facedown and studies suggest that they may have suffocated. Because of SUDEP, epilepsy patients are told not to sleep facedown.
If you are not an epilepsy patient, you probably know someone or will meet someone who is; I think everyone should know at least a little about this.
Published by mariacristinasanfeliu
I’m an aspiring writer still looking for exactly what I want to write about, with a lot of creativity, imagination and desire to write.
I studied Writing and Rhetoric at Syracuse University where I explored many different sides of writing through my classes and extracurricular activities in order to narrow my search for an identity as a writer.
I have written for Citrus TV Noticias and La Voz magazine, both of which gave me the chance to explore different mediums in which to write in. Through Citrus TV Noticias I also gained experience in translating from English to Spanish and vice versa, which is also something that I would be interested in working on since I am fluent in both of these languages. I was also an intern at Syracuse University Press where I got hands on experience in what goes into actually editing and publishing a book.
Through out the last four years I have faced a lot of challenges, which helped chape the person I am today. After being in a tragic car accident, being in comma, having a Traumatic Brain Injury, and being in therapy for over a year, I am a new me, willing to face challenges and knowing how to deal with them. I want to write about my accident and life after it to help others, show them it can be done and help in any way I can.
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2 thoughts on “SUDEP Awareness Days”
I was only barely aware of SUDEP until reading this post. So first, thank you for the information, and second, I wanted to share that I am genuinely happy for you that your seizures are able to be controlled by medication. Unfortunately, mine cannot. (At least not yet, we’re still trying!) And finally, thank you for having the courage to write about your epilepsy. It’s taken me almost 20 years to be able to do it. Well done and bravo!
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Thank you so much!! That is so nice to hear! I hope you find the right medication to control it
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