I can finally say it, I am four years seizure free! Thanks mostly to my wonderful neurologist for finding the right medication, keeping me on it, Sonexus Health Pharmacy for helping me get the medicine, and everyone around me for making sure I have my medicine. It's just incredible, literally, I can't believe I've made … Continue reading Four Years Seizure Free!
This morning I woke up earlier than usual, even though I had a long day at work because today I had an appointment with my neurologist. It was just a routine checkup, to let him know how everything is going and of course I was very proud to tell him that, if everything keeps going … Continue reading Almost there!
I was very happy to learn that a hospital here in Puerto Rico, Manatí Medical Center, just opened a comprehensive epilepsy unit in an effort to provide reach patients al over the island. Crean unidad comprensiva de epilepsia para pacientes puertorriqueños As the article says, the goal of the center is to monitor, diagnose and … Continue reading Comprehensive Epilepsy Unit
I know It was yesterday but it's never to late to try to raise awareness, especially for something as important to me as epilepsy. So this year I would like to share this quiz, which I was very surprised and happy to see BuzzFeed taking a part in Epilepsy Day. What do you know about … Continue reading Epilepsy Day 2019
Yesterday I realized that for the first time I missed an appointment with my neurologist earlier this month. I still don't understand how that could happen, those appointments are the most important ones, at least for me. I'm still wondering why they didn't call me from his office to confirm the day before like they … Continue reading It has been a very long time since I’ve read a book so captivating
As of right now I will attempt to read this book It's not a big deal until you look at it like this: Yes, that is 382 pages of text, no pictures or drawings. It is the longest book I've tried to read since the accident six years ago and it looks a little intimidating … Continue reading That’s a long book
Yes we are, we all are and don't ever let anyone tell you otherwise. You and me and everyone else fighting this battle is a champion. We each fight our own battles and become stronger after every they are done. Keep fighting and don't give up because you can do it, I know you can. … Continue reading You are strong
As I was reading about Epilepsy Month, which will soon come to an end, I found an interesting article about the recently published memoir, A Mind Unraveled. This memoir, by the award winning journalist and best selling author Kurt Eichenwald tells the story of his struggle with epilepsy. I want to see how somebody else … Continue reading A Mind Unraveled
As a part of Epilepsy Awareness Month, I would like to share an interesting article I found: Solving a century-old neuroscience puzzle may lead to epilepsy therapy Neurotransmitters, or NTs, are chemicals that neurons synthesize and release, which bind to receptors on adjacent neurons. Excitatory NTs like glutamate will activate neurons (i.e. cause them to … Continue reading Solving a neuroscience puzzle
November is an important month, not because the holiday season starts soon or because we eat turkey, because it's epilepsy awareness month. There are a lot of activities happening around the world to teach people about epilepsy and to help people who suffer from it. I want to welcome November, like I always do, offering … Continue reading Epilepsy Awareness Month
After a very long day yesterday, I have been tired all day, since this morning when I took my medicine at 8 am and went right back to sleep for 2 hours and a half. I was tired last night when I came home and I've been tired all day. Because of this I was … Continue reading Live, laugh and forget you’re tired
As you probably know, there are a few hurricanes lurking around, deciding where they want to attack. We are hoping and praying that nothing comes even close to Puerto Rico because, apart from the fact that no one over likes hurricanes, we are not ready for another one. We still have not recovered from Maria … Continue reading Oh my Vimpat and Keppra
Every time I visit a doctor I want to give him or her good news, to show them that their treatment is working. It was no different this morning when I went to see my neurologist for my routine 6 month appointment. I had nothing but good news to tell him: 1) still seizure free … Continue reading The neurologist and the cleaning
This weekend I was finally trusted to spend two nights at home by myself. It wasn't safe for me to stay alone before in case I had a seizure, but being over three years seizure free, I earned the trust to spend a weekend by myself. I wasn't alone, I had my dogs. I spent … Continue reading Two days of independence
Check this out: Stanford researchers listen for silent seizures with "brain stethoscope" that turns brain waves into sound This is an article about this pretty awesome thing neurologists at Stanford are developing that allows doctors and nurses to hear a seizure. It's like an EEG but instead, except EEGs can't always read every seizure because not … Continue reading The “brain stethoscope”