Three years seizure free!!! This third year is just a little bit sweeter than last year was just because there were a few moment which I thought would ruin it. Throughout both hurricanes and afterwards I was so terrified and nervous of having another seizure because I was worried about so many things. I was … Continue reading Three years!!!!!!!!!!
This week, being the week before Easter, I thought I would be able to rest and relax. I was hoping to go to the beach, the movies and maybe even have a lazy day just staying home all day. The week didn't turn out this way. Begging with having to go get blood drawn on … Continue reading Easter break
I found an article that talks about what may cause memory loss in epilepsy. I went through this for the first three years of my epilepsy, not even being aware when I had a seizure. I know that a lot of us loose memory of the seizure, before during and sometimes after. Epilepsy study links … Continue reading Memory loss in epilepsy
Don't forget to take a look at my pages for articles on Epilepsy and TBI. I am constantly looking for new and interesting articles to share. Hope you enjoy them! Pages- TBI Epilepsy
Today, International Epilepsy Day, I had my first appointment of 2018 with my neurologist. Epilepsy Day is celebrated on the second Monday of February to celebrate the strength of those affected by epilepsy and raise awareness. Apart from talking about the blackout we had last night where about six towns lost power because of an … Continue reading Happy #EpilepsyDay 2018!
After learning about Embrace, the epilepsy smart watch, I saw there was an app similar to that for the Apple Watch. Since then I have been looking for the app, and finally found it as well as many others for iPhone. The 10 best epilepsy apps They sound great but they remind me of that … Continue reading SeizAlarm and other seizure and epilepsy alarm apps
There's a new smartwatch on the market called Embrace smart watch. The thing that makes this watch different from other smart watches and caught my attention is that it tracks seizures. This new watch which has just been cleared by the FDA, has been tested on patients and collected over 6530 hours of data, during … Continue reading Embrace smart watch: seizure tracking and epilepsy management
I try to stay active everyday, working out in the morning before doing anything else during the week. This just helps wake me up, at least it does some days. Other days, like today, I wake up tired; I sleep nine hours and I wake up tired. Then I wash my face, have breakfast, workout, … Continue reading Side effects
When my neurologist prescribed the epilepsy medicine I should take he also spoke to us about me taking some supplements. At the moment I didn't remember the reasons for which I had to take the supplements but my mother agreed with the doctor and I had no reason to doubt my neurologist. They told me … Continue reading Folic Acid Awareness
Having epilepsy is not easy, but I have learned that I have to be brave when talking about it, I have to bring it up and I have to tell people. I bring it up and I'm not afraid to because that's just a part of my new normal, living with epilepsy. I know people … Continue reading Start the conversation
"My Shot at Epilepsy" is this year's challenge to raise money for Epilepsy Awareness month. Participants are asked to take a picture or video of themselves in "My shot pose" (arm raised in the air, index finger pointing up), making a donation to MyShotAtEpilepsy .org and sharing it on social media, tagging friends to donate … Continue reading My Shot at Epilepsy
My bad, I didn’t give November the welcome it deserves being a very important month. No, I’m not talking about thanksgiving, I’m talking about Epilepsy Awareness Month. This doesn’t mean that we need to take extra care of our epilepsy, we have to do that all year, but share our knowledge and news about epilepsy. … Continue reading Epilepsy Awareness Month 2017
This morning I had an appointment with my neurologist to discuss those episodes I have had and the result of the EEG. I'll be honest with you, I was terrified that he would say they found something weird in my brain activity meaning he would need to increase the epilepsy medication dose and I was … Continue reading EEG results are in
My electroencephalogram was removed today. This process, just like gluing it to my head yesterday, didn't hurt one bit but it was a lot faster. I'm not sure what the technician put on my hair to make it all come out, but my head was really sticky, like I had way too much hair gel. … Continue reading After the EEG
Like I said yesterday, today I was getting an EEG. I had 24 electrodes glued and taped to my head. These are all connected to a recorder that I'm have to carry around like a purse, except it's not really that cute. Each of the cables from the electrodes is a different color and that's … Continue reading Electroencephalogram