This is for my fellow epilepsy warriors, just in case you didn’t know, like me, People with epilepsy are at higher risk than other people for developing osteoporosis and fractures. The Epilepsy Foundation also mentions that women have a higher risk of developing osteoporosis (and therefore broken bones) than men and people on multiple antiseizure … Continue reading Epilepsy and Osteoporosis
I just found the best online certification that I want all my family and friends to get, just in case. This free, online certificate is a 30 minute course that “educates the public on the Epilepsy Foundation’s basic procedures for responding to someone having a seizure.” If you complete the course you receive a certificate … Continue reading Seizure First Aid Ready
In March I got the big surprise that the pharmacy that had been providing me with both anti epilepsy medication for the past six years, would no longer be able to help me with the most expensive one of the two medicines I need. Why? Because suddenly my health insurance decided to provide coverage for … Continue reading I couldn’t afford to control my seizures anymore
Yesterday I get a bombshell dropped on me, the pharmaceutical company that has been providing me my epilepsy medicine for over four years won’t cover my most expensive medicine anymore.
This morning I had an appointment with my neurologist over the phone. I was anxiously waiting for this appointment because today he would give me the results of the EEG I had in December. He didn’t mention anything at first, which I was sure was a good sign, but I still wanted to know so … Continue reading Five years seizure free!
Early this morning I had another appointment at the neurologist, this time it was to have the EEG removed from my head. I was more than happy to go, to not have anything glued to my head or cables running down my back from my head to a bag. After everything was removed I was … Continue reading I could do it all!
When my neurologist tells me I need to get another electroencephalogram, I feel a little anxious. I don’t like the thought of having cables glued to my scalp for a whole day and not being able to do anything but stay home, anyway I have to get the EEG. They use this to detect electrical … Continue reading My latest electroencephalogram
I have been dealing with the quarantine pretty well. I don’t really mind, as I’ve said before. I have been exercising, working a little bit, cooking and I’ve done all of this without being rushed. But I started to feel a little anxiety last week when I noticed I was falling asleep later every night. … Continue reading Quarantine sleep anxiety
I made it another year! I’m five years seizure free! This would be a great reason to go out for dinner to celebrate and we have on past years but sadly we can’t this year. The best and safest way to celebrate is staying home but this doesn’t stop me from being incredibly happy! Five … Continue reading 5 years seizure free!
When I first heard of the Coronavirus spread, the first question I had was if it would increase my risk of seizures, if it would cause one, even while I'm on medication or if it increased the risk of coronavirus. People with epilepsy are not immunocompromised so it does not put us at a higher … Continue reading Epilepsy and COVID-19
It's Christmas! It's finally here, the happiest tone of the year! There's lights, music, parties, family, friends, and food, a lot of food. But there is also pressure to be at all the parties, to host some of them, to make or bring food, to give presents, to talk to everyone at the party and … Continue reading How to survive and enjoy the holiday season
My second annual appointment with the neurologist was today. I'm always exited for these because I always have good news and he's always very happy about how well I'm doing, but today, the tables were turned. I was doing very well, he was asking about my driving and it was decided that I would practice … Continue reading Slowly start again
November is finally here and this means we're one month closer to Christmas, we celebrate Thanksgiving and last but not least, it's Epilepsy Awareness Month. during which the goal is to educate others on #SeizureFirstAid. Instead of talking about how exited I am for the holiday season and to start putting up my Christmas decorations, … Continue reading #StaySafeSide
Today I found the description I wrote four years ago of a seizure. https://unstoppablemaria.com/2015/08/13/if-i-cant-speak-im-tired-everything-hurts-and-i-dont-understand-why-it-means-i-had-a-seizure/ This was the first time I was able to put into words what it was like having and what happens during seizure . Yes, that seizure is the only one I remember but I still don't know why I was able … Continue reading What happened during a seizure