Start the conversation

Having epilepsy is not easy, but I have learned that I have to be brave when talking about it, I have to bring it up and I have to tell people. I bring it up and I'm not afraid to because that's just a part of my new normal, living with epilepsy. I know people … Continue reading Start the conversation

My Shot at Epilepsy

"My Shot at Epilepsy" is this year's challenge to raise money for Epilepsy Awareness month. Participants are asked to take a picture or video of themselves in "My shot pose" (arm raised in the air, index finger pointing up), making a donation to MyShotAtEpilepsy .org and sharing it on social media, tagging friends to donate … Continue reading My Shot at Epilepsy

Epilepsy Awareness Month 2017

My bad, I didn’t give November the welcome it deserves being a very important month. No, I’m not talking about thanksgiving, I’m talking about Epilepsy Awareness Month.  This doesn’t mean that we need to take extra care of our epilepsy, we have to do that all year, but share our knowledge and news about epilepsy. … Continue reading Epilepsy Awareness Month 2017

EEG results are in

This morning I had an appointment with my neurologist to discuss those episodes I have had and the result of the EEG. I'll be honest with you, I was terrified that he would say they found something weird in my brain activity meaning he would need to increase the epilepsy medication dose and I was … Continue reading EEG results are in

After the EEG

My electroencephalogram was removed today. This process, just like gluing it to my head yesterday, didn't hurt one bit but it was a lot faster.  I'm not sure what the technician put on my hair to make it all come out, but my head was really sticky, like I had way too much hair gel. … Continue reading After the EEG

Electroencephalogram

Like I said yesterday, today I was getting an EEG. I had 24 electrodes glued and taped to my head. These are all connected to a recorder that I'm have to carry around like a purse, except it's not really that cute. Each of the cables from the electrodes is a different color and that's … Continue reading Electroencephalogram

Scary news about epilepsy

I want to stay as informed as I can about epilepsy, living with epilepsy for five years now, but some of the information can be a little scary, sometimes true, but other times scary.  I was just reading about the growing number of people with epilepsy (Number of People with Epilepsy in the United States … Continue reading Scary news about epilepsy

Trying to understand those episodes

I was reading a little bit about different kinds of seizures, trying to see if those episodes I have had could have been a seizure. It's just for my curiosity because I will know after I get the results from my EEG on the 24th. I thought it might have been an Absence Seizure, also … Continue reading Trying to understand those episodes

Thank you Sonexus Health Pharmacy

This time last year I was celebrating having received three months worth of my anti seizure medicine for the first time thanks to Sonexus Health Pharmacy. Today I received another one and have been getting help from them for the last year through their patient support services. I don't think I have words to describe … Continue reading Thank you Sonexus Health Pharmacy