Two years and a half

I stopped my monthly count once I reached 2 years of being seizure free but today marks two and a half years seizure free and I think that deserves a recognition.  It's not just two years anymore, it's over two years and I am so proud of that. There have been challenges since April like … Continue reading Two years and a half

After the EEG

My electroencephalogram was removed today. This process, just like gluing it to my head yesterday, didn't hurt one bit but it was a lot faster.  I'm not sure what the technician put on my hair to make it all come out, but my head was really sticky, like I had way too much hair gel. … Continue reading After the EEG

Electroencephalogram

Like I said yesterday, today I was getting an EEG. I had 24 electrodes glued and taped to my head. These are all connected to a recorder that I'm have to carry around like a purse, except it's not really that cute. Each of the cables from the electrodes is a different color and that's … Continue reading Electroencephalogram

The first time I heard I have epilepsy

After reading  Becoming Comfortable with "My" Epilepsy: Strategies that Patients Use in the Journey from Diagnosis to Acceptance and Disclosure I think it's important to recognize that first, epilepsy is not an easy thing to deal with and that we all have different methods of coping with it. The first time I remember being told … Continue reading The first time I heard I have epilepsy

Only two more months!!!

I keep thinking it is already the end of February, I really don't know why I keep speeding up time, but during the other 7 days of this month I have been thinking "oh god, I missed it, I forgot to celebrate one more month seizure free". I didn't miss it, it's today and I … Continue reading Only two more months!!!

21st Century Cures Act

This caught my attention today and I think it's worth sharing: Tomorrow the House of Representatives will vote on the 21st Century Cures Act. I did not know anything about this until today and I'm still learning about this ACT, but as far as I know, this will allow for more research for healthcare. This would … Continue reading 21st Century Cures Act

#MyEpilepsyHero

In November, we don't  only celebrate Thanksgiving , but it's also National Epilepsy Month, during which all the epilepsy advocates dedicate the month to educating people on seizures and epilepsy. This year, epilepsy advocate, Greg Grunberg has teamed up with Sunovion Pharmaceuticals to create the social media campaign #MyEpilepsyHero. This campaign invites people to share … Continue reading #MyEpilepsyHero

Puerto Rican Epilepsy Society is involved in the Walgreens 5K

Today I met the president of the board or directors of Sociedad Puertorriqueña de Epilepsia or Puerto Rican Epilepsy Society which I had mentioned before. My boss had told me I'd have the chance to meet them, and that day came today. It was great, meeting someone with such an important position who works to help people … Continue reading Puerto Rican Epilepsy Society is involved in the Walgreens 5K