November 8, 2016

First I will say that as of yesterday I am I year and 7 months seizure free! Five months to go! There were other, more important things going on. Because of these, I did not get to celebrate this time, but it's ok. I'm still recovering from what happened yesterday. I woke up at 7:30 … Continue reading November 8, 2016

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#MyEpilepsyHero

In November, we don't  only celebrate Thanksgiving , but it's also National Epilepsy Month, during which all the epilepsy advocates dedicate the month to educating people on seizures and epilepsy. This year, epilepsy advocate, Greg Grunberg has teamed up with Sunovion Pharmaceuticals to create the social media campaign #MyEpilepsyHero. This campaign invites people to share … Continue reading #MyEpilepsyHero

A year and a half! Can you believe it?

It's official, one more month seizure free!! And now it's exactly one year and a half seizure free!! That means I only have six months left until my fist two years seizure free are done, the first two out of hopefully many more.  This time I'm celebrating with a weekend at the beach, which happens … Continue reading A year and a half! Can you believe it?

I have a problem and you’re not helping

Earlier today I found out that apparently no health insurance wants to cover epilepsy medicine. I visited my neurologist's office this afternoon to ask about the justification we asked him to write for me, the one so I would be accepted back into my mother's health insurance coverage. His secretary didn't remember seeing it but … Continue reading I have a problem and you’re not helping

Big news for my neurologist 

Today I have an appointment with my neurologist, and I've been thinking all day how happy he's gonna be when I tell him that next week I'll be 12 months seizure free. Of course, by all day I mean since I woke up less than an hour ago. I know that after he asks how … Continue reading Big news for my neurologist