February 13, 2023 is International Epilepsy Day, a day that provides “a platform for people with epilepsy to share their experiences and stories with a global audience.” This is important because epilepsy is “one of the world’s oldest known medical conditions”, there is still misunderstanding, fear, and reluctance to learn and talk about it. This … Continue reading International Epilepsy Day 2023
Category: Seizure Free!
As of yesterday, April 8, 2022, I am officially seven years seizure free! I didn’t have time to write a celebratory blog post like I do every year but that doesn’t mean I was not happy of telling everyone I could about it. I almost thought I didn’t make it earlier this week when because … Continue reading 7 years seizure free!
I got my EEG results today. I wanted the results to show that there was absolutely no seizure activity anymore so I could be taken off the anti seizure medication. I knew that wasn’t going to happen so I just hoped for something more realistic like it not getting worse. The EEG showed just that; … Continue reading EEG results- Still seizure free!
I was very excited about today, April 8, 2021. This is a very important day to me; it’s like a second birthday because today I celebrate being one more year seizure free. Today I am officially six years seizure free! On top of that, I got my second Covid19 vaccine this afternoon. I think that … Continue reading Vaccinated and seizure free!
Yesterday I get a bombshell dropped on me, the pharmaceutical company that has been providing me my epilepsy medicine for over four years won’t cover my most expensive medicine anymore.
Today I found the description I wrote four years ago of a seizure. https://unstoppablemaria.com/2015/08/13/if-i-cant-speak-im-tired-everything-hurts-and-i-dont-understand-why-it-means-i-had-a-seizure/ This was the first time I was able to put into words what it was like having and what happens during seizure . Yes, that seizure is the only one I remember but I still don't know why I was able … Continue reading What happened during a seizure
I can finally say it, I am four years seizure free! Thanks mostly to my wonderful neurologist for finding the right medication, keeping me on it, Sonexus Health Pharmacy for helping me get the medicine, and everyone around me for making sure I have my medicine. It's just incredible, literally, I can't believe I've made … Continue reading Four Years Seizure Free!
This morning I woke up earlier than usual, even though I had a long day at work because today I had an appointment with my neurologist. It was just a routine checkup, to let him know how everything is going and of course I was very proud to tell him that, if everything keeps going … Continue reading Almost there!
Three years seizure free!!! This third year is just a little bit sweeter than last year was just because there were a few moment which I thought would ruin it. Throughout both hurricanes and afterwards I was so terrified and nervous of having another seizure because I was worried about so many things. I was … Continue reading Three years!!!!!!!!!!
After learning about Embrace, the epilepsy smart watch, I saw there was an app similar to that for the Apple Watch. Since then I have been looking for the app, and finally found it as well as many others for iPhone. The 10 best epilepsy apps They sound great but they remind me of that … Continue reading SeizAlarm and other seizure and epilepsy alarm apps
I just realized today that I have an appointment with my neurologist in two weeks. My first thought was "this is great, I'm still seizure free", but then I remembered that last time I saw my neurologist he asked me why I wasn't driving yet and seemed disappointed in me. That was back in August … Continue reading Reminders
This time last year I was celebrating having received three months worth of my anti seizure medicine for the first time thanks to Sonexus Health Pharmacy. Today I received another one and have been getting help from them for the last year through their patient support services. I don't think I have words to describe … Continue reading Thank you Sonexus Health Pharmacy
Tonight, at my third driving lesson in my building's parking lot and my first time behind the wheel as a two year seizure free woman I felt more in control and sure of myself. Did I mention I have been seizure free for two years? Maybe I just feel safer because of how happy I … Continue reading My first driving lesson after officially being seizure free for two years
I don't remember what else happened on April 8, 2015, I just remember that aura and that seizure. I remember my legs and arms shaking, and wanting to make it stop but not being able to do that. I remember my mother being there, sitting next to me on my bed. Today, Saturday April 8, … Continue reading Two years seizure free!!!
I keep thinking it is already the end of February, I really don't know why I keep speeding up time, but during the other 7 days of this month I have been thinking "oh god, I missed it, I forgot to celebrate one more month seizure free". I didn't miss it, it's today and I … Continue reading Only two more months!!!
Unstoppable María 