I can finally say it, I am four years seizure free! Thanks mostly to my wonderful neurologist for finding the right medication, keeping me on it, Sonexus Health Pharmacy for helping me get the medicine, and everyone around me for making sure I have my medicine. It's just incredible, literally, I can't believe I've made … Continue reading Four Years Seizure Free!
This morning I woke up earlier than usual, even though I had a long day at work because today I had an appointment with my neurologist. It was just a routine checkup, to let him know how everything is going and of course I was very proud to tell him that, if everything keeps going … Continue reading Almost there!
Three years seizure free!!! This third year is just a little bit sweeter than last year was just because there were a few moment which I thought would ruin it. Throughout both hurricanes and afterwards I was so terrified and nervous of having another seizure because I was worried about so many things. I was … Continue reading Three years!!!!!!!!!!
After learning about Embrace, the epilepsy smart watch, I saw there was an app similar to that for the Apple Watch. Since then I have been looking for the app, and finally found it as well as many others for iPhone. The 10 best epilepsy apps They sound great but they remind me of that … Continue reading SeizAlarm and other seizure and epilepsy alarm apps
I just realized today that I have an appointment with my neurologist in two weeks. My first thought was "this is great, I'm still seizure free", but then I remembered that last time I saw my neurologist he asked me why I wasn't driving yet and seemed disappointed in me. That was back in August … Continue reading Reminders
This time last year I was celebrating having received three months worth of my anti seizure medicine for the first time thanks to Sonexus Health Pharmacy. Today I received another one and have been getting help from them for the last year through their patient support services. I don't think I have words to describe … Continue reading Thank you Sonexus Health Pharmacy
Tonight, at my third driving lesson in my building's parking lot and my first time behind the wheel as a two year seizure free woman I felt more in control and sure of myself. Did I mention I have been seizure free for two years? Maybe I just feel safer because of how happy I … Continue reading My first driving lesson after officially being seizure free for two years
I don't remember what else happened on April 8, 2015, I just remember that aura and that seizure. I remember my legs and arms shaking, and wanting to make it stop but not being able to do that. I remember my mother being there, sitting next to me on my bed. Today, Saturday April 8, … Continue reading Two years seizure free!!!
I keep thinking it is already the end of February, I really don't know why I keep speeding up time, but during the other 7 days of this month I have been thinking "oh god, I missed it, I forgot to celebrate one more month seizure free". I didn't miss it, it's today and I … Continue reading Only two more months!!!
Today, as I was looking for more freelance jobs, something came over me and I decided to go after that internship I applied to this weekend. I called them because they had shown interest but never called me. Turns out they had been calling me, at the wrong number. After I gave them my correct … Continue reading I got an internship!
It's official, one more month seizure free!! And now it's exactly one year and a half seizure free!! That means I only have six months left until my fist two years seizure free are done, the first two out of hopefully many more. This time I'm celebrating with a weekend at the beach, which happens … Continue reading A year and a half! Can you believe it?
Have you ever heard of application stalking? I hadn't, I don't even know if it's a thing, but I think one of my cellphone apps is stalking me. No, really, I know I sounds ridiculous or paranoid, but it's true. This app is supposed to be helping me, but it's taking it to a very … Continue reading Seizure app is stalking me
Today we had to go all the way to the health care store to argue my case, and I was pumped to argue my case and fight. We got there, and the place was empty, it was Thursday afternoon, but we still had to wait because they only had one or two people helping customers. … Continue reading I call this a victory
Well, the health insurance still hasn't approved my request for the anti-seizure medicine. My epilepsy won't wait for them to decide to approve to help pay for my medicine. If I didn't have an angel watching over me at the pharmacy, I would be in crisis mode, which could cause a seizure. This is totally … Continue reading The battle continues- Day 3
My neurologist sent the pharmacy the justification for my need of the anti-seizure medicine yesterday afternoon. The pharmacy didn't get around to getting it to the health insurance until today. They could be excused if they didn't know my need for the medicine was like, yesterday, if we hadn't been asking for it for days. … Continue reading My battle with health insurance- Day 2