Happy #EpilepsyDay 2018!

Today, International Epilepsy Day, I had my first appointment of 2018 with my neurologist. Epilepsy Day is celebrated on the second Monday of February to celebrate the strength of those affected by epilepsy and raise awareness. Apart from talking about the blackout we had last night where about six towns lost power because of an … Continue reading Happy #EpilepsyDay 2018!

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Start the conversation

Having epilepsy is not easy, but I have learned that I have to be brave when talking about it, I have to bring it up and I have to tell people. I bring it up and I'm not afraid to because that's just a part of my new normal, living with epilepsy. I know people … Continue reading Start the conversation

My Shot at Epilepsy

"My Shot at Epilepsy" is this year's challenge to raise money for Epilepsy Awareness month. Participants are asked to take a picture or video of themselves in "My shot pose" (arm raised in the air, index finger pointing up), making a donation to MyShotAtEpilepsy .org and sharing it on social media, tagging friends to donate … Continue reading My Shot at Epilepsy

Epilepsy Awareness Month 2017

My bad, I didn’t give November the welcome it deserves being a very important month. No, I’m not talking about thanksgiving, I’m talking about Epilepsy Awareness Month.  This doesn’t mean that we need to take extra care of our epilepsy, we have to do that all year, but share our knowledge and news about epilepsy. … Continue reading Epilepsy Awareness Month 2017

Scary news about epilepsy

I want to stay as informed as I can about epilepsy, living with epilepsy for five years now, but some of the information can be a little scary, sometimes true, but other times scary.  I was just reading about the growing number of people with epilepsy (Number of People with Epilepsy in the United States … Continue reading Scary news about epilepsy

Trying to understand those episodes

I was reading a little bit about different kinds of seizures, trying to see if those episodes I have had could have been a seizure. It's just for my curiosity because I will know after I get the results from my EEG on the 24th. I thought it might have been an Absence Seizure, also … Continue reading Trying to understand those episodes

21st Century Cures Act

This caught my attention today and I think it's worth sharing: Tomorrow the House of Representatives will vote on the 21st Century Cures Act. I did not know anything about this until today and I'm still learning about this ACT, but as far as I know, this will allow for more research for healthcare. This would … Continue reading 21st Century Cures Act

#MyEpilepsyHero

In November, we don't  only celebrate Thanksgiving , but it's also National Epilepsy Month, during which all the epilepsy advocates dedicate the month to educating people on seizures and epilepsy. This year, epilepsy advocate, Greg Grunberg has teamed up with Sunovion Pharmaceuticals to create the social media campaign #MyEpilepsyHero. This campaign invites people to share … Continue reading #MyEpilepsyHero

Keeping track of my epilepsy: My Seizure Diary

I really didn't keep track of my seizures, my mother did, she shared that information with my neurologist, and that's about all the knowledge I had about my seizures. As I mentioned before, during my countdown for one year seizure free, I know the date and approximate time because of a text to my friends, … Continue reading Keeping track of my epilepsy: My Seizure Diary

Puerto Rican Epilepsy Society is involved in the Walgreens 5K

Today I met the president of the board or directors of Sociedad Puertorriqueña de Epilepsia or Puerto Rican Epilepsy Society which I had mentioned before. My boss had told me I'd have the chance to meet them, and that day came today. It was great, meeting someone with such an important position who works to help people … Continue reading Puerto Rican Epilepsy Society is involved in the Walgreens 5K