The FDA just approved the sale of lacosamide tablets, which is the generic name for the anti-seizure medication, Vimpat. This is the medication that finally controlled my seizures and the one that I had trouble getting because of its cost. I hope that now that the FDA approved the sale of lacosamide it will be … Continue reading Lacomaside (Generic Vimpat) was approved by the FDA
I was forced to take a day off of PiYo for an EEG today. This is the 24 hour test where 24 electrodes are placed on my head for 24 hours to track and record brain wave patterns. The abnormal patterns show problems,which in my case are seizures. I always dread having this done, but … Continue reading Tracking my brain wave patterns for 24 hours
Today’s workout was very weird. It was difficult to concentrate on what I had to to because I was trying to listen to my phone at the same time. I had it on speaker as I did the PiYo video because I was on hold with my health insurance provider and I had to pay … Continue reading PiYo was my savior today
In March I got the big surprise that the pharmacy that had been providing me with both anti epilepsy medication for the past six years, would no longer be able to help me with the most expensive one of the two medicines I need. Why? Because suddenly my health insurance decided to provide coverage for … Continue reading I couldn’t afford to control my seizures anymore
I was very excited about today, April 8, 2021. This is a very important day to me; it’s like a second birthday because today I celebrate being one more year seizure free. Today I am officially six years seizure free! On top of that, I got my second Covid19 vaccine this afternoon. I think that … Continue reading Vaccinated and seizure free!
When my neurologist tells me I need to get another electroencephalogram, I feel a little anxious. I don’t like the thought of having cables glued to my scalp for a whole day and not being able to do anything but stay home, anyway I have to get the EEG. They use this to detect electrical … Continue reading My latest electroencephalogram
When I first heard of the Coronavirus spread, the first question I had was if it would increase my risk of seizures, if it would cause one, even while I'm on medication or if it increased the risk of coronavirus. People with epilepsy are not immunocompromised so it does not put us at a higher … Continue reading Epilepsy and COVID-19
It has officially been one year since I moved into my own apartment. Well, owned by my parents right next to their house, but it's mine. This is the first time I have a kitchen all to myself and no, I haven't set anything on fire, at least not yet. I think that's a very … Continue reading One year in my apartment
I just realized what a huge mistake I made staying in bed this morning after I turned off my alarm. In my head, I turned it off, got up, took my medicine which include B6, Folic Acid, Ritalin, Zoloft, and most importantly one doze of Vimpat. That is the most important one in the morning … Continue reading I forgot this morning
As a part of Epilepsy Awareness Month, I would like to share an interesting article I found: Solving a century-old neuroscience puzzle may lead to epilepsy therapy Neurotransmitters, or NTs, are chemicals that neurons synthesize and release, which bind to receptors on adjacent neurons. Excitatory NTs like glutamate will activate neurons (i.e. cause them to … Continue reading Solving a neuroscience puzzle
November is an important month, not because the holiday season starts soon or because we eat turkey, because it's epilepsy awareness month. There are a lot of activities happening around the world to teach people about epilepsy and to help people who suffer from it. I want to welcome November, like I always do, offering … Continue reading Epilepsy Awareness Month
Now that my new kitchen is almost ready, I have to start getting used to cooking again. As I’ve mentioned before, using the stove or oven was prohibited for me after the accident because of the epilepsy. Also, I don't want to think about what would have happened if I ever left the stove or … Continue reading Cooking in MY kitchen
This morning I had an appointment with my neurologist to discuss those episodes I have had and the result of the EEG. I'll be honest with you, I was terrified that he would say they found something weird in my brain activity meaning he would need to increase the epilepsy medication dose and I was … Continue reading EEG results are in
Some of you may remember my anger at the health insurance company, which just made me unsure whether I was going to be able to have my medicine, right? Well for those of you who don't or were not with us at the time, I'll give you a little summary: After my TBI I was … Continue reading Take that health care!
The first time I went to the neurologist here in Puerto Rico I was given some rules, thing I can't do when living with epilepsy. Some of these I can do now that I have been able to control my epilepsy for so long, others I still need to reach the two years, and there … Continue reading What’s for lunch?