The FDA just approved the sale of lacosamide tablets, which is the generic name for the anti-seizure medication, Vimpat. This is the medication that finally controlled my seizures and the one that I had trouble getting because of its cost. I hope that now that the FDA approved the sale of lacosamide it will be … Continue reading Lacomaside (Generic Vimpat) was approved by the FDA
Today’s workout was very weird. It was difficult to concentrate on what I had to to because I was trying to listen to my phone at the same time. I had it on speaker as I did the PiYo video because I was on hold with my health insurance provider and I had to pay … Continue reading PiYo was my savior today
In March I got the big surprise that the pharmacy that had been providing me with both anti epilepsy medication for the past six years, would no longer be able to help me with the most expensive one of the two medicines I need. Why? Because suddenly my health insurance decided to provide coverage for … Continue reading I couldn’t afford to control my seizures anymore
Yesterday I get a bombshell dropped on me, the pharmaceutical company that has been providing me my epilepsy medicine for over four years won’t cover my most expensive medicine anymore.
Ok before jumping in to what everyone is talking about right now I want to share some good news. This week I started a second job! And better than having two jobs it’s a blogging job. Right now I’m setting up a blog for a company and pretty soon I will start writing whatever they … Continue reading Work and the Coronavirus
Today I found the description I wrote four years ago of a seizure. https://unstoppablemaria.com/2015/08/13/if-i-cant-speak-im-tired-everything-hurts-and-i-dont-understand-why-it-means-i-had-a-seizure/ This was the first time I was able to put into words what it was like having and what happens during seizure . Yes, that seizure is the only one I remember but I still don't know why I was able … Continue reading What happened during a seizure
Yesterday I went to see my neurologist but it was just a routine appointment. Like always he was happy to hear that nothing has happened, no seizures. I did have to talk to him about an incident I had last night with my pills. I keep all ten of them in a weekly pill container … Continue reading Medications and hot weather
I just realized what a huge mistake I made staying in bed this morning after I turned off my alarm. In my head, I turned it off, got up, took my medicine which include B6, Folic Acid, Ritalin, Zoloft, and most importantly one doze of Vimpat. That is the most important one in the morning … Continue reading I forgot this morning
November is an important month, not because the holiday season starts soon or because we eat turkey, because it's epilepsy awareness month. There are a lot of activities happening around the world to teach people about epilepsy and to help people who suffer from it. I want to welcome November, like I always do, offering … Continue reading Epilepsy Awareness Month
Remember when the health insurance didn't want to pay for my Ritalin two years ago? (What is is now health insurance?) They said I didn't need it and they wouldn't cover it and they're at it again. Last time we had problems they argued that I was too old to take it, this time they … Continue reading Hi health insurance, it’s been a long time
As you probably know, there are a few hurricanes lurking around, deciding where they want to attack. We are hoping and praying that nothing comes even close to Puerto Rico because, apart from the fact that no one over likes hurricanes, we are not ready for another one. We still have not recovered from Maria … Continue reading Oh my Vimpat and Keppra
Sleeping has always been my favorite pass time but I thought this all changed after the accident, having to wake up at 8:00 a.m. every day to take my epilepsy medicine. I was sure this was one of the many things the accident had taken away from me, especially since I am forced to wake … Continue reading I think I’m sleeping too much
This time last year I was celebrating having received three months worth of my anti seizure medicine for the first time thanks to Sonexus Health Pharmacy. Today I received another one and have been getting help from them for the last year through their patient support services. I don't think I have words to describe … Continue reading Thank you Sonexus Health Pharmacy
Some of you may remember my anger at the health insurance company, which just made me unsure whether I was going to be able to have my medicine, right? Well for those of you who don't or were not with us at the time, I'll give you a little summary: After my TBI I was … Continue reading Take that health care!
Earlier today I found out that apparently no health insurance wants to cover epilepsy medicine. I visited my neurologist's office this afternoon to ask about the justification we asked him to write for me, the one so I would be accepted back into my mother's health insurance coverage. His secretary didn't remember seeing it but … Continue reading I have a problem and you’re not helping