SeizAlarm and other seizure and epilepsy alarm apps

After learning about Embrace, the epilepsy smart watch, I saw there was an app similar to that for the Apple Watch. Since then I have been looking for the app, and finally found it as well as many others for iPhone. The 10 best epilepsy apps They sound great but they remind me of that … Continue reading SeizAlarm and other seizure and epilepsy alarm apps

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Happy New Year!!! 2018!

In just a few hours we'll get what feels like a new start. I know there's a lot of us who need a new start but this doesn't necessarily come with a new year, a new calendar does. We have to go into the new year with a new attitude, I know I need to. … Continue reading Happy New Year!!! 2018!

Epilepsy Awareness Month 2017

My bad, I didn’t give November the welcome it deserves being a very important month. No, I’m not talking about thanksgiving, I’m talking about Epilepsy Awareness Month.  This doesn’t mean that we need to take extra care of our epilepsy, we have to do that all year, but share our knowledge and news about epilepsy. … Continue reading Epilepsy Awareness Month 2017

Two years and a half

I stopped my monthly count once I reached 2 years of being seizure free but today marks two and a half years seizure free and I think that deserves a recognition.  It's not just two years anymore, it's over two years and I am so proud of that. There have been challenges since April like … Continue reading Two years and a half

EEG results are in

This morning I had an appointment with my neurologist to discuss those episodes I have had and the result of the EEG. I'll be honest with you, I was terrified that he would say they found something weird in my brain activity meaning he would need to increase the epilepsy medication dose and I was … Continue reading EEG results are in

Trying to understand those episodes

I was reading a little bit about different kinds of seizures, trying to see if those episodes I have had could have been a seizure. It's just for my curiosity because I will know after I get the results from my EEG on the 24th. I thought it might have been an Absence Seizure, also … Continue reading Trying to understand those episodes

Thank you Sonexus Health Pharmacy

This time last year I was celebrating having received three months worth of my anti seizure medicine for the first time thanks to Sonexus Health Pharmacy. Today I received another one and have been getting help from them for the last year through their patient support services. I don't think I have words to describe … Continue reading Thank you Sonexus Health Pharmacy

The first time I heard I have epilepsy

After reading  Becoming Comfortable with "My" Epilepsy: Strategies that Patients Use in the Journey from Diagnosis to Acceptance and Disclosure I think it's important to recognize that first, epilepsy is not an easy thing to deal with and that we all have different methods of coping with it. The first time I remember being told … Continue reading The first time I heard I have epilepsy

5 years

May year 5 be as great and as seizure free as this one. Well, more if I can stay seizure free for the whole year. Well, I did stay seizure free and it was a great year, take a look at what else happened this year: I was able to complete one masters class and … Continue reading 5 years

My first driving lesson after officially being seizure free for two years

Tonight, at my third driving lesson in my building's parking lot and my first time behind the wheel as a two year seizure free woman I felt more in control and sure of myself.  Did I mention I have been seizure free for two years? Maybe I just feel safer because of how happy I … Continue reading My first driving lesson after officially being seizure free for two years