It has been eight years since my last seizure. That’s 96 months,about 417 weeks, 2,920 days and over 70,000 hours my body has been working, along with my medications, to keep my brain’s electrical rhythms in balance. Being seizure free I have been able to travel, work two jobs, and exercise at least 5 days … Continue reading Eight years seizure free!
Tag: seizure free
On March 29, 2015 I decided to share the journey I had been on for three years. I was scared and a little insecure, but today, nine years later I’m proud to say I have lost some of that fear and insecurity. It’s still difficult putting myself out there and waiting to see if people … Continue reading Nine years later
I went for my first appointment of the year with my neurologist. I always like to go with someone in case he says something that I need to remember, gives me instructions or anything that someone else needs or should hear in case I forget. Today had to go by myself and I was a … Continue reading Big milestone at the neurologist
They day finally came, I was able to get my hand on Lacosamide or generic Vimpat, here in Puerto Rico. First of all, I would like to acknowledge my mom’s genius mind for suggesting we try Sam’s Club pharmacy instead of Walgreens, where they kept telling us it wasn’t available in Puerto Rico yet. When … Continue reading I got Lacosamide in Puerto Rico!
My TBI was officially one decade ago. When I think about it like that, a whole decade, it seems like an eternity but 10 years is a long time, even if sometime it may not seem that way. A lot has happened during these last ten years, not just my recovery. Ten years ago, I … Continue reading Ten years after my TBI
As of yesterday, April 8, 2022, I am officially seven years seizure free! I didn’t have time to write a celebratory blog post like I do every year but that doesn’t mean I was not happy of telling everyone I could about it. I almost thought I didn’t make it earlier this week when because … Continue reading 7 years seizure free!
I got my EEG results today. I wanted the results to show that there was absolutely no seizure activity anymore so I could be taken off the anti seizure medication. I knew that wasn’t going to happen so I just hoped for something more realistic like it not getting worse. The EEG showed just that; … Continue reading EEG results- Still seizure free!
I was forced to take a day off of PiYo for an EEG today. This is the 24 hour test where 24 electrodes are placed on my head for 24 hours to track and record brain wave patterns. The abnormal patterns show problems,which in my case are seizures. I always dread having this done, but … Continue reading Tracking my brain wave patterns for 24 hours
Today’s workout was very weird. It was difficult to concentrate on what I had to to because I was trying to listen to my phone at the same time. I had it on speaker as I did the PiYo video because I was on hold with my health insurance provider and I had to pay … Continue reading PiYo was my savior today
In March I got the big surprise that the pharmacy that had been providing me with both anti epilepsy medication for the past six years, would no longer be able to help me with the most expensive one of the two medicines I need. Why? Because suddenly my health insurance decided to provide coverage for … Continue reading I couldn’t afford to control my seizures anymore
I was very excited about today, April 8, 2021. This is a very important day to me; it’s like a second birthday because today I celebrate being one more year seizure free. Today I am officially six years seizure free! On top of that, I got my second Covid19 vaccine this afternoon. I think that … Continue reading Vaccinated and seizure free!
Yesterday I get a bombshell dropped on me, the pharmaceutical company that has been providing me my epilepsy medicine for over four years won’t cover my most expensive medicine anymore.
I made it another year! I’m five years seizure free! This would be a great reason to go out for dinner to celebrate and we have on past years but sadly we can’t this year. The best and safest way to celebrate is staying home but this doesn’t stop me from being incredibly happy! Five … Continue reading 5 years seizure free!
Happy New Year! So here I am looking forward to this year, hoping great things happen and trying to ignore the bad. I started off the year at the beach with my family, like I usually do, which always fills me with hope for the new year. This year however, I'm scared because we ended … Continue reading Positive mind for 2020
It's Christmas! It's finally here, the happiest season of the year! There's lights, music, parties, family, friends, and food, a lot of food. But there is also pressure to be at all the parties, to host some of them, to make or bring food, to give presents, to talk to everyone at the party and … Continue reading How to survive and enjoy the holiday season