I stopped my monthly count once I reached 2 years of being seizure free but today marks two and a half years seizure free and I think that deserves a recognition. It's not just two years anymore, it's over two years and I am so proud of that. There have been challenges since April like … Continue reading Two years and a half
This morning I had an appointment with my neurologist to discuss those episodes I have had and the result of the EEG. I'll be honest with you, I was terrified that he would say they found something weird in my brain activity meaning he would need to increase the epilepsy medication dose and I was … Continue reading EEG results are in
I was reading a little bit about different kinds of seizures, trying to see if those episodes I have had could have been a seizure. It's just for my curiosity because I will know after I get the results from my EEG on the 24th. I thought it might have been an Absence Seizure, also … Continue reading Trying to understand those episodes
This time last year I was celebrating having received three months worth of my anti seizure medicine for the first time thanks to Sonexus Health Pharmacy. Today I received another one and have been getting help from them for the last year through their patient support services. I don't think I have words to describe … Continue reading Thank you Sonexus Health Pharmacy
After reading Becoming Comfortable with "My" Epilepsy: Strategies that Patients Use in the Journey from Diagnosis to Acceptance and Disclosure I think it's important to recognize that first, epilepsy is not an easy thing to deal with and that we all have different methods of coping with it. The first time I remember being told … Continue reading The first time I heard I have epilepsy
May year 5 be as great and as seizure free as this one. Well, more if I can stay seizure free for the whole year. Well, I did stay seizure free and it was a great year, take a look at what else happened this year: I was able to complete one masters class and … Continue reading 5 years
Tonight, at my third driving lesson in my building's parking lot and my first time behind the wheel as a two year seizure free woman I felt more in control and sure of myself. Did I mention I have been seizure free for two years? Maybe I just feel safer because of how happy I … Continue reading My first driving lesson after officially being seizure free for two years
I don't remember what else happened on April 8, 2015, I just remember that aura and that seizure. I remember my legs and arms shaking, and wanting to make it stop but not being able to do that. I remember my mother being there, sitting next to me on my bed. Today, Saturday April 8, … Continue reading Two years seizure free!!!
I knew this day was coming but I didn't think it would be now, I thought I had at least one month, and I wasn't sure how I felt about it. Happy, scared or just nervous? But today I got the ok. I was at my 6 month visit to the neurologist and like always … Continue reading Ready to drive?
I keep thinking it is already the end of February, I really don't know why I keep speeding up time, but during the other 7 days of this month I have been thinking "oh god, I missed it, I forgot to celebrate one more month seizure free". I didn't miss it, it's today and I … Continue reading Only two more months!!!