I got Lacosamide in Puerto Rico!

They day finally came, I was able to get my hand on Lacosamide or generic Vimpat, here in Puerto Rico. First of all, I would like to acknowledge my mom’s genius mind for suggesting we try Sam’s Club pharmacy instead of Walgreens, where they kept telling us it wasn’t available in Puerto Rico yet. When … Continue reading I got Lacosamide in Puerto Rico!

Ten years after my TBI

My TBI was officially one decade ago. When I think about it like that, a whole decade, it seems like an eternity but 10 years is a long time, even if sometime it may not seem that way. A lot has happened during these last ten years, not just my recovery. Ten years ago, I … Continue reading Ten years after my TBI

7 years seizure free!

As of yesterday, April 8, 2022, I am officially seven years seizure free! I didn’t have time to write a celebratory blog post like I do every year but that doesn’t mean I was not happy of telling everyone I could about it. I almost thought I didn’t make it earlier this week when because … Continue reading 7 years seizure free!

EEG results- Still seizure free!

I got my EEG results today. I wanted the results to show that there was absolutely no seizure activity anymore so I could be taken off the anti seizure medication. I knew that wasn’t going to happen so I just hoped for something more realistic like it not getting worse. The EEG showed just that; … Continue reading EEG results- Still seizure free!

Tracking my brain wave patterns for 24 hours

I was forced to take a day off of PiYo for an EEG today. This is the 24 hour test where 24 electrodes are placed on my head for 24 hours to track and record brain wave patterns. The abnormal patterns show problems,which in my case are seizures. I always dread having this done, but … Continue reading Tracking my brain wave patterns for 24 hours

PiYo was my savior today

Today’s workout was very weird. It was difficult to concentrate on what I had to to because I was trying to listen to my phone at the same time. I had it on speaker as I did the PiYo video because I was on hold with my health insurance provider and I had to pay … Continue reading PiYo was my savior today

I couldn’t afford to control my seizures anymore

In March I got the big surprise that the pharmacy that had been providing me with both anti epilepsy medication for the past six years, would no longer be able to help me with the most expensive one of the two medicines I need. Why? Because suddenly my health insurance decided to provide coverage for … Continue reading I couldn’t afford to control my seizures anymore

Vaccinated and seizure free!

I was very excited about today, April 8, 2021. This is a very important day to me; it’s like a second birthday because today I celebrate being one more year seizure free. Today I am officially six years seizure free! On top of that, I got my second Covid19 vaccine this afternoon. I think that … Continue reading Vaccinated and seizure free!

5 years seizure free!

I made it another year! I’m five years seizure free! This would be a great reason to go out for dinner to celebrate and we have on past years but sadly we can’t this year. The best and safest way to celebrate is staying home but this doesn’t stop me from being incredibly happy! Five … Continue reading 5 years seizure free!

Positive mind for 2020

Happy New Year! So here I am looking forward to this year, hoping great things happen and trying to ignore the bad. I started off the year at the beach with my family, like I usually do, which always fills me with hope for the new year. This year however, I'm scared because we ended … Continue reading Positive mind for 2020

How to survive and enjoy the holiday season

It's Christmas! It's finally here, the happiest tone of the year! There's lights, music, parties, family, friends, and food, a lot of food. But there is also pressure to be at all the parties, to host some of them, to make or bring food, to give presents, to talk to everyone at the party and … Continue reading How to survive and enjoy the holiday season

What happened during a seizure

Today I found the description I wrote four years ago of a seizure. https://unstoppablemaria.com/2015/08/13/if-i-cant-speak-im-tired-everything-hurts-and-i-dont-understand-why-it-means-i-had-a-seizure/ This was the first time I was able to put into words what it was like having and what happens during seizure . Yes, that seizure is the only one I remember but I still don't know why I was able … Continue reading What happened during a seizure

Medications and hot weather

Yesterday I went to see my neurologist but it was just a routine appointment. Like always he was happy to hear that nothing has happened, no seizures. I did have to talk to him about an incident I had last night with my pills. I keep all ten of them in a weekly pill container … Continue reading Medications and hot weather

I forgot this morning

I just realized what a huge mistake I made staying in bed this morning after I turned off my alarm. In my head, I turned it off, got up, took my medicine which include B6, Folic Acid, Ritalin, Zoloft, and most importantly one doze of Vimpat. That is the most important one in the morning … Continue reading I forgot this morning