You are strong

Yes we are, we all are and don't ever let anyone tell you otherwise. You and me and everyone else fighting this battle is a champion. We each fight our own battles and become stronger after every they are done. Keep fighting and don't give up because you can do it, I know you can. … Continue reading You are strong

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Epilepsy Awareness Month

November is an important month, not because the holiday season starts soon or because we eat turkey, because it's epilepsy awareness month. There are a lot of activities happening around the world to teach people about epilepsy and to help people who suffer from it. I want to welcome November, like I always do, offering … Continue reading Epilepsy Awareness Month

The neurologist and the cleaning

Every time I visit a doctor I want to give him or her good news, to show them that their treatment is working. It was no different this morning when I went to see my neurologist for my routine 6 month appointment. I had nothing but good news to tell him: 1) still seizure free … Continue reading The neurologist and the cleaning

Cooking in MY kitchen

Now that my new kitchen is almost ready, I have to start getting used to cooking again. As I’ve mentioned before, using the stove or oven was prohibited for me after the accident because of the epilepsy. Also, I don't want to think about what would have happened if I ever left the stove or … Continue reading Cooking in MY kitchen

How could I forget?

I have absolutely no idea how this morning I forgot the most important thing I have to do every morning. I would kick myself if I could right now. I didn't realize that I screwed up until 8:00 PM, when I was taking my nightly doze of Keppra and Vimpat, my epilepsy medicine, that I … Continue reading How could I forget?

Two days of independence

This weekend I was finally trusted to spend two nights at home by myself. It wasn't safe for me to stay alone before in case I had a seizure, but being over three years seizure free, I earned the trust to spend a weekend by myself. I wasn't alone, I had my dogs. I spent … Continue reading Two days of independence

Three years!!!!!!!!!!

Three years seizure free!!! This third year is just a little bit sweeter than last year was just because there were a few moment which I thought  would ruin it. Throughout both hurricanes and afterwards I was so terrified and nervous of having another seizure because I was worried about so many things. I was … Continue reading Three years!!!!!!!!!!

Memory loss in epilepsy

I found an article that talks about what may cause memory loss in epilepsy. I went through this for the first three years of my epilepsy, not even being aware when I had a seizure. I know that a lot of us loose memory of the seizure, before during and sometimes after. Epilepsy study links … Continue reading Memory loss in epilepsy

SeizAlarm and other seizure and epilepsy alarm apps

After learning about Embrace, the epilepsy smart watch, I saw there was an app similar to that for the Apple Watch. Since then I have been looking for the app, and finally found it as well as many others for iPhone. The 10 best epilepsy apps They sound great but they remind me of that … Continue reading SeizAlarm and other seizure and epilepsy alarm apps

Happy New Year!!! 2018!

In just a few hours we'll get what feels like a new start. I know there's a lot of us who need a new start but this doesn't necessarily come with a new year, a new calendar does. We have to go into the new year with a new attitude, I know I need to. … Continue reading Happy New Year!!! 2018!

Epilepsy Awareness Month 2017

My bad, I didn’t give November the welcome it deserves being a very important month. No, I’m not talking about thanksgiving, I’m talking about Epilepsy Awareness Month.  This doesn’t mean that we need to take extra care of our epilepsy, we have to do that all year, but share our knowledge and news about epilepsy. … Continue reading Epilepsy Awareness Month 2017

Two years and a half

I stopped my monthly count once I reached 2 years of being seizure free but today marks two and a half years seizure free and I think that deserves a recognition.  It's not just two years anymore, it's over two years and I am so proud of that. There have been challenges since April like … Continue reading Two years and a half

EEG results are in

This morning I had an appointment with my neurologist to discuss those episodes I have had and the result of the EEG. I'll be honest with you, I was terrified that he would say they found something weird in my brain activity meaning he would need to increase the epilepsy medication dose and I was … Continue reading EEG results are in

Trying to understand those episodes

I was reading a little bit about different kinds of seizures, trying to see if those episodes I have had could have been a seizure. It's just for my curiosity because I will know after I get the results from my EEG on the 24th. I thought it might have been an Absence Seizure, also … Continue reading Trying to understand those episodes

Thank you Sonexus Health Pharmacy

This time last year I was celebrating having received three months worth of my anti seizure medicine for the first time thanks to Sonexus Health Pharmacy. Today I received another one and have been getting help from them for the last year through their patient support services. I don't think I have words to describe … Continue reading Thank you Sonexus Health Pharmacy