I didn’t mean to, but I proved myself wrong

It has been 42 hours since I missed my nightly dose of 4 Keppra and 1 Vimpat. These are the two medicines that have been doing a great job of helping me control my epilepsy. I spent 24 hours without taking Vimpat and 42 without Keppra. Nothing happened during the day I spent without Keppra … Continue reading I didn’t mean to, but I proved myself wrong

That time I missed a dose

I've been really good about taking my medicine on time, sometimes I'm a little too strict about that. If it's 8 pm, it's 8 pm, not a minute sooner, and I never forget. I complain when my mom keeps checking up on me, asking if I took my medicines, because she knows I'm even more … Continue reading That time I missed a dose

That time I had multiple seizures

1/9/2013 Yesterday I woke up in a hospital. I didn’t understand what happened until they told me. Then I understand I had a seizure and that why I dint remember and why I was in the hospital. I was writing, is stopped making sense to me and I went into a seizure. Wow, it's hard … Continue reading That time I had multiple seizures

Look at me world, controlling my epilepsy

YES, it’s been 9 months since my last seizure, 9 MONTHS! I’m only 3 months away from making it a year without seizures. Nine months is a lot; babies are born in this amount of time. I’ve completed a whole school year without seizures. That’s 3 less months than the 12 months that make a … Continue reading Look at me world, controlling my epilepsy

I can do this

Last night I was having trouble concentrating because I was so happy I couldn't think about how to express my happiness. Today, even though I'm still very happy, I can concentrate more and I hope I can put this happiness into words. But I don’t just want to put it into words, I want to … Continue reading I can do this

This doesn’t change us

People have different ideas of what epilepsy is and how you control it or how to control a seizure. The truth is, you can't control someone having a seizure, and you shouldn't try. But there are different types of epilepsy, and different kinds of seizures. There are some you don't notice, the are the one's … Continue reading This doesn’t change us

Now it’s official!

I made it! When the clock hit 8 last night and I took my medicines it was official, I made it 7 months seizure free. I was going to say it was my greatest achievement but that's not true, I think just waking up from a comma is my greatest achievement, and everything after that. … Continue reading Now it’s official!

The celebration continues, 7 months seizure free!!!!!!!!!

I have been waiting all week for November 8th. If you remember, October 8 marked my 6 months seizure free, so November 8 marks 7 months seizure free. It won’t be official until tonight, but I’m pretty sure I will make it. If I haven’t had a seizure for 6 months, I don’t think I’ll … Continue reading The celebration continues, 7 months seizure free!!!!!!!!!

I fear the seizures

I am 6 months, going on 7, seizure free; but that doesn't change the fact that I have epilepsy, and this is a very scary thing.  It's the ongoing fear that you can have a seizure. Today, at around 5 pm, I was really tired and I didn't know why.  I had just finished tutoring … Continue reading I fear the seizures

Music therapy for epilepsy?

So, I had seen something about finding links between music and epilepsy.  I didn't really think much about it, but then I started reading about it.  Now it looks like they're really on to something. Apparently, music is perceived in the same place in the brain where seizures begin.  Through studies, neurologists have learned that … Continue reading Music therapy for epilepsy?

SUDEP Awareness Days

Even though my seizures are controlled and reading about this really scares me, it's SUDEP Awareness Day and I feel strongly about this and all things related to Epilepsy. So, what is SUDEP and why is there awareness? SUDEP is the sudden, unexpected death of someone with epilepsy.  This can be the cause of death … Continue reading SUDEP Awareness Days

Two negatives make a positive

I just think this is really cool, not what this man lost because of epilepsy, but the incredible talent he discovered after.