Last night, as I was ready to go to bed, I began to worry I might have forgotten to get labs done for this morning’s appointment with my neurologist. I calmed down when I realized that I didn’t have to bring him any results this time, just good news that I am still seizure free. … Continue reading Great news from the doctor
Tag: neurologist
Yesterday, as I talked to my neurologist, I was surprised to get the ok to try the energy gels for long runs and/or races, as I told him I’m still running and have started to run longer races. I knew of these energy gels but never looked into them because I just assumed he wouldn’t … Continue reading A runner’s diet
Today I had my yearly January visit to the neurologist and just like I suspected, it was packed. Mondays are always really busy because both doctors are seeing patients and they are also running different tests such as EEGs on patients. I waited in the hallway and tried to calm unhappy patients, telling them that … Continue reading January 2025 visit to the neurologist
It was finally time to discuss my EEG results with my neurologist. I was really looking forward to this appointment hoping for amazing results, results that showed absolutely no seizure activity in my brain. I know that was pretty farfetched, but after my EEG two years ago, my neurologist said there was less seizure activity … Continue reading 2024 EEG Results
It had been two years since my last electroencephalogram so as much as I didn’t want to, it had to be this year. Even though I know I need to do this, I dread every time my neurologist says I need another one, but he’s right, it had been two years. Two years is a … Continue reading Time for another EEG
I did it again, I controlled my seizures for another year! I am now nine years seizure free! Nine years is a lot and every day that goes by without a seizure, it becomes less likely that I will have another one. I will know better what the chances are when I get the EEG … Continue reading Nine years seizure free!!!
I had my 6 month appointment with my neurologist today, and just like for the last eight years, everything was fine with my epilepsy. His first question was the same as always, any seizures? And my answer was also the same as in the past, no! When I told him about my new job, I … Continue reading Another successful visit to the neurologist
I submitted my story for the Epilepsy Foundation last week. I was going to wait until they shared it on their website and Facebook but, since that hasn’t happened yet, I guess I’ll have to post it myself: I didn’t understand what they were telling me when my family told me I had epilepsy. How? … Continue reading Changing my epilepsy story
As usual, I was very excited about my appointment to see my neurologist for my 6 month visit. His first question, as usual, was if I had had any seizures. He assumed I hadn’t since I had not called him but he still has to ask and my answer was obviously no, no seizures. I … Continue reading Another neurologist appointment
February 13, 2023 is International Epilepsy Day, a day that provides “a platform for people with epilepsy to share their experiences and stories with a global audience.” This is important because epilepsy is “one of the world’s oldest known medical conditions”, there is still misunderstanding, fear, and reluctance to learn and talk about it. This … Continue reading International Epilepsy Day 2023
I went for my first appointment of the year with my neurologist. I always like to go with someone in case he says something that I need to remember, gives me instructions or anything that someone else needs or should hear in case I forget. Today had to go by myself and I was a … Continue reading Big milestone at the neurologist
They day finally came, I was able to get my hand on Lacosamide or generic Vimpat, here in Puerto Rico. First of all, I would like to acknowledge my mom’s genius mind for suggesting we try Sam’s Club pharmacy instead of Walgreens, where they kept telling us it wasn’t available in Puerto Rico yet. When … Continue reading I got Lacosamide in Puerto Rico!
As of yesterday, April 8, 2022, I am officially seven years seizure free! I didn’t have time to write a celebratory blog post like I do every year but that doesn’t mean I was not happy of telling everyone I could about it. I almost thought I didn’t make it earlier this week when because … Continue reading 7 years seizure free!
I got my EEG results today. I wanted the results to show that there was absolutely no seizure activity anymore so I could be taken off the anti seizure medication. I knew that wasn’t going to happen so I just hoped for something more realistic like it not getting worse. The EEG showed just that; … Continue reading EEG results- Still seizure free!
I was forced to take a day off of PiYo for an EEG today. This is the 24 hour test where 24 electrodes are placed on my head for 24 hours to track and record brain wave patterns. The abnormal patterns show problems,which in my case are seizures. I always dread having this done, but … Continue reading Tracking my brain wave patterns for 24 hours
Unstoppable María 