On March 29, 2015 I decided to share the journey I had been on for three years. I was scared and a little insecure, but today, nine years later I’m proud to say I have lost some of that fear and insecurity. It’s still difficult putting myself out there and waiting to see if people … Continue reading Nine years later
They day finally came, I was able to get my hand on Lacosamide or generic Vimpat, here in Puerto Rico. First of all, I would like to acknowledge my mom’s genius mind for suggesting we try Sam’s Club pharmacy instead of Walgreens, where they kept telling us it wasn’t available in Puerto Rico yet. When … Continue reading I got Lacosamide in Puerto Rico!
So now there’s only five days left of the PiYo/T25 workout program. From now until Saturday it’s going to be a piece of cake because I did the most difficult video for the last time today. As tired as I am from that 50 minute PiYo video, I couldn’t help but smile when I realized … Continue reading Less that one week left!
As of yesterday, April 8, 2022, I am officially seven years seizure free! I didn’t have time to write a celebratory blog post like I do every year but that doesn’t mean I was not happy of telling everyone I could about it. I almost thought I didn’t make it earlier this week when because … Continue reading 7 years seizure free!
The FDA just approved the sale of lacosamide tablets, which is the generic name for the anti-seizure medication, Vimpat. This is the medication that finally controlled my seizures and the one that I had trouble getting because of its cost. I hope that now that the FDA approved the sale of lacosamide it will be … Continue reading Lacomaside (Generic Vimpat) was approved by the FDA
I got my EEG results today. I wanted the results to show that there was absolutely no seizure activity anymore so I could be taken off the anti seizure medication. I knew that wasn’t going to happen so I just hoped for something more realistic like it not getting worse. The EEG showed just that; … Continue reading EEG results- Still seizure free!
In March I got the big surprise that the pharmacy that had been providing me with both anti epilepsy medication for the past six years, would no longer be able to help me with the most expensive one of the two medicines I need. Why? Because suddenly my health insurance decided to provide coverage for … Continue reading I couldn’t afford to control my seizures anymore
Today marks nine years since my TBI. Some say it’s kind of my birthday but I’m not sure that’s what it is; it caused a new beginning, that’s for sure, but I don’t feel like it’s appropriate to say it’s birthday. Birth is a happy moment and there was nothing happy about this day nine … Continue reading Nine years
Yesterday I get a bombshell dropped on me, the pharmaceutical company that has been providing me my epilepsy medicine for over four years won’t cover my most expensive medicine anymore.
I have been dealing with the quarantine pretty well. I don’t really mind, as I’ve said before. I have been exercising, working a little bit, cooking and I’ve done all of this without being rushed. But I started to feel a little anxiety last week when I noticed I was falling asleep later every night. … Continue reading Quarantine sleep anxiety
We are just ending our second week of isolation in Puerto Rico on Monday and were told last night by the governor that we will be in isolation for two more weeks, until April 12. She also announced that the rules will be more strict during these next two weeks with the curfew starting earlier, … Continue reading Brain Injury and social distancing
For some unknown reason my back started hurting last Sunday. I thought it was odd since I didn't remember hurting it but I thought it would be gone in a few days. More than a week later, the pain doesn't seem to be going anywhere and I still don't know why it started. It's not … Continue reading Where did my back go?
It's Christmas! It's finally here, the happiest season of the year! There's lights, music, parties, family, friends, and food, a lot of food. But there is also pressure to be at all the parties, to host some of them, to make or bring food, to give presents, to talk to everyone at the party and … Continue reading How to survive and enjoy the holiday season
This morning I realized I talk too much, or at least give too much unnecessary detail when talking. These are details that others don't need or care about but for me are necessary, as I talk and retell the events that occurred I remember what happened. But I just realized this morning that people don't … Continue reading Please be patient while I remember