International Epilepsy Day 2023

February 13, 2023 is International Epilepsy Day, a day that provides “a platform for people with epilepsy to share their experiences and stories with a global audience.” This is important because epilepsy is “one of the world’s oldest known medical conditions”, there is still misunderstanding, fear, and reluctance to learn and talk about it. This … Continue reading International Epilepsy Day 2023

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Big milestone at the neurologist

I went for my first appointment of the year with my neurologist. I always like to go with someone in case he says something that I need to remember, gives me instructions or anything that someone else needs or should hear in case I forget. Today had to go by myself and I was a … Continue reading Big milestone at the neurologist

I got Covid

I thought my recent Christmas vacation had been everything I wanted, great weather, lots of sight seeing, spending time with family and friends and a lot of good memories. I didn’t know until a few days after I got back that I also got Covid on this trip. I had been extremely careful and managed … Continue reading I got Covid

Using Apple Fitness

As of a few weeks ago I had to change the streaming service I used to workout. Now I’m using Apple Fitness instead Beach Body on Demand and the two are very different. Beach Body had a lot of different workout programs and Apple Fitness has hundreds of videos. I was already used to using … Continue reading Using Apple Fitness

Covid updated booster and flu shot

Tonight I made an impromptu decision to get the flu vaccine while I was getting the refill of a medication at the pharmacy. When I asked about the flu vaccine, the pharmacist asked if I also wanted to get the updated Covid19 booster. This is a new booster that was recently approved by the FDA … Continue reading Covid updated booster and flu shot

ChaLEAN Extreme-Push Phase

I just finished the first part of the ChaLEAN Extreme program. This program includes four different four week resistance training calendars. The one I just finished is called Burn Phase It did take me longer than four weeks because I had Mycoplasma when I was starting the third week, but I jumped back in after … Continue reading ChaLEAN Extreme-Push Phase

More workouts and no more snacking

I thought everything was perfect as long as I took my anti convulsive medications, didn’t drink alcohol and slept eight hours every night. I forgot that I shouldn’t gain weight, at least not too much. Gaining weight affects my medication levels; if they are too low it could lead to a seizure. I have only … Continue reading More workouts and no more snacking

Feeling better and even exercising again!

This week I didn’t feel any symptoms of Mycoplasma so I decided it would be a good idea to start exercising again. I knew that after not doing anything for one week and just a few recovery videos last week, it wasn’t going to be easy to start again, and I was right. But I’m … Continue reading Feeling better and even exercising again!

I have walking pneumonia

Last week I thought I had COVID. I didn’t feel well and had symptoms similar to those of COVID, but after the quick test at home was negative for a few days, I was sent to the lab to make sure what it was. The results came back positive for mycoplasma. I’m going to be … Continue reading I have walking pneumonia

I got Lacosamide in Puerto Rico!

They day finally came, I was able to get my hand on Lacosamide or generic Vimpat, here in Puerto Rico. First of all, I would like to acknowledge my mom’s genius mind for suggesting we try Sam’s Club pharmacy instead of Walgreens, where they kept telling us it wasn’t available in Puerto Rico yet. When … Continue reading I got Lacosamide in Puerto Rico!

My body, my choice

I remember when I first learned about Roe Vs. Wade. I was in middle school and we were taught about the importance of this Supreme Court decision making it legal for women to make decisions about their own bodies and have safe abortions if they decided to have one. After I learned about it, I … Continue reading My body, my choice

PiYo/T25 Hybrid- Week Five

I finally made it to week five of the PiYo/T25 Hybrid program. It took me a little longer to complete week four because I had trouble finishing it the first time I tried. I was just too tired so I took a break and rested for what was left of that week and tried again … Continue reading PiYo/T25 Hybrid- Week Five

7 years seizure free!

As of yesterday, April 8, 2022, I am officially seven years seizure free! I didn’t have time to write a celebratory blog post like I do every year but that doesn’t mean I was not happy of telling everyone I could about it. I almost thought I didn’t make it earlier this week when because … Continue reading 7 years seizure free!

Lacomaside (Generic Vimpat) was approved by the FDA

The FDA just approved the sale of lacosamide tablets, which is the generic name for the anti-seizure medication, Vimpat. This is the medication that finally controlled my seizures and the one that I had trouble getting because of its cost. I hope that now that the FDA approved the sale of lacosamide it will be … Continue reading Lacomaside (Generic Vimpat) was approved by the FDA

EEG results- Still seizure free!

I got my EEG results today. I wanted the results to show that there was absolutely no seizure activity anymore so I could be taken off the anti seizure medication. I knew that wasn’t going to happen so I just hoped for something more realistic like it not getting worse. The EEG showed just that; … Continue reading EEG results- Still seizure free!