They day finally came, I was able to get my hand on Lacosamide or generic Vimpat, here in Puerto Rico. First of all, I would like to acknowledge my mom’s genius mind for suggesting we try Sam’s Club pharmacy instead of Walgreens, where they kept telling us it wasn’t available in Puerto Rico yet. When … Continue reading I got Lacosamide in Puerto Rico!
I got my EEG results today. I wanted the results to show that there was absolutely no seizure activity anymore so I could be taken off the anti seizure medication. I knew that wasn’t going to happen so I just hoped for something more realistic like it not getting worse. The EEG showed just that; … Continue reading EEG results- Still seizure free!
This morning I had an appointment with my neurologist over the phone. I was anxiously waiting for this appointment because today he would give me the results of the EEG I had in December. He didn’t mention anything at first, which I was sure was a good sign, but I still wanted to know so … Continue reading Five years seizure free!
Today I found the description I wrote four years ago of a seizure. https://unstoppablemaria.com/2015/08/13/if-i-cant-speak-im-tired-everything-hurts-and-i-dont-understand-why-it-means-i-had-a-seizure/ This was the first time I was able to put into words what it was like having and what happens during seizure . Yes, that seizure is the only one I remember but I still don't know why I was able … Continue reading What happened during a seizure
It's March again and you know what that means? Brain Injury Awareness Month. Every year different organizations have different campaigns to celebrate this month, like #ChangeYourMind from the Brain Injury Association of America or the best one I've seen so far #notinvisible. This campaign is being used by Faces of TBI, a movement started by … Continue reading Brain Injury Awareness Month 2019
Yes we are, we all are and don't ever let anyone tell you otherwise. You and me and everyone else fighting this battle is a champion. We each fight our own battles and become stronger after every they are done. Keep fighting and don't give up because you can do it, I know you can. … Continue reading You are strong
As a part of Epilepsy Awareness Month, I would like to share an interesting article I found: Solving a century-old neuroscience puzzle may lead to epilepsy therapy Neurotransmitters, or NTs, are chemicals that neurons synthesize and release, which bind to receptors on adjacent neurons. Excitatory NTs like glutamate will activate neurons (i.e. cause them to … Continue reading Solving a neuroscience puzzle
November is an important month, not because the holiday season starts soon or because we eat turkey, because it's epilepsy awareness month. There are a lot of activities happening around the world to teach people about epilepsy and to help people who suffer from it. I want to welcome November, like I always do, offering … Continue reading Epilepsy Awareness Month
As you probably know, there are a few hurricanes lurking around, deciding where they want to attack. We are hoping and praying that nothing comes even close to Puerto Rico because, apart from the fact that no one over likes hurricanes, we are not ready for another one. We still have not recovered from Maria … Continue reading Oh my Vimpat and Keppra
After learning about Embrace, the epilepsy smart watch, I saw there was an app similar to that for the Apple Watch. Since then I have been looking for the app, and finally found it as well as many others for iPhone. The 10 best epilepsy apps They sound great but they remind me of that … Continue reading SeizAlarm and other seizure and epilepsy alarm apps
A brain can be damaged but it can also improve and be stronger
My electroencephalogram was removed today. This process, just like gluing it to my head yesterday, didn't hurt one bit but it was a lot faster. I'm not sure what the technician put on my hair to make it all come out, but my head was really sticky, like I had way too much hair gel. … Continue reading After the EEG
You know how we have to do this science fair projects every year? Most of them don't lead to anything, but once in a while there is one student who makes a discovery so great that scientists haven't even thought of already, like scientists with masters and doctorates haven't figured that out. Everybody needs to … Continue reading Discovery to keep neurons alive
There is no way I can or would ever want to deny that I now have epilepsy. This has become one of the themes of this blog, I like sharing news I find interesting or are important about epilepsy to help other patients and to make people aware of this, but I want people to … Continue reading What is epilepsy?
Today, September 8th, 2016 we celebrate 17 months, seventeen seizure free months . It's been one year and 5 months! Only 7 months left to the full two years!!!! As it turns out my parents wanted to go out to dinner tonight, I didn't want to because I had been working from home and doing homework … Continue reading 17 months!