Since the beginning of the year I’ve wanted to go on vacation to celebrate the 10 year anniversary of my TBI. We tried to planning many different things but finally landed on a trip to Florida to visit my aunt, go to Disney, Kennedy Space Center and Saint Augustine. I wanted to go to Disney … Continue reading My 10 year TBI survivor celebration!
Ten years ago today was the third and last surgery on my cranium after the accident I was in nine months before in May. Even though it has been a decade, I still remember how terrified I was during the days before and the day of the operation. I remember still being awake as the … Continue reading September 21, 2012
I thought everything was perfect as long as I took my anti convulsive medications, didn’t drink alcohol and slept eight hours every night. I forgot that I shouldn’t gain weight, at least not too much. Gaining weight affects my medication levels; if they are too low it could lead to a seizure. I have only … Continue reading More workouts and no more snacking
They day finally came, I was able to get my hand on Lacosamide or generic Vimpat, here in Puerto Rico. First of all, I would like to acknowledge my mom’s genius mind for suggesting we try Sam’s Club pharmacy instead of Walgreens, where they kept telling us it wasn’t available in Puerto Rico yet. When … Continue reading I got Lacosamide in Puerto Rico!
After eight long weeks, I finished the PiYo/T25 Hybrid Program yesterday. It feels like that program was longer than two months instead of just eight weeks but I enjoyed doing those two very different routines together. At times they both felt just as difficult, even though they are very different. I this that’s what I … Continue reading Finished PiYo/T25 Hybrid Workout
So now there’s only five days left of the PiYo/T25 workout program. From now until Saturday it’s going to be a piece of cake because I did the most difficult video for the last time today. As tired as I am from that 50 minute PiYo video, I couldn’t help but smile when I realized … Continue reading Less that one week left!
I’m happy to say I got to week seven of the eight week PiYo/T25 Hybrid program.
My TBI was officially one decade ago. When I think about it like that, a whole decade, it seems like an eternity but 10 years is a long time, even if sometime it may not seem that way. A lot has happened during these last ten years, not just my recovery. Ten years ago, I … Continue reading Ten years after my TBI
As of yesterday, April 8, 2022, I am officially seven years seizure free! I didn’t have time to write a celebratory blog post like I do every year but that doesn’t mean I was not happy of telling everyone I could about it. I almost thought I didn’t make it earlier this week when because … Continue reading 7 years seizure free!
The FDA just approved the sale of lacosamide tablets, which is the generic name for the anti-seizure medication, Vimpat. This is the medication that finally controlled my seizures and the one that I had trouble getting because of its cost. I hope that now that the FDA approved the sale of lacosamide it will be … Continue reading Lacomaside (Generic Vimpat) was approved by the FDA
I got my EEG results today. I wanted the results to show that there was absolutely no seizure activity anymore so I could be taken off the anti seizure medication. I knew that wasn’t going to happen so I just hoped for something more realistic like it not getting worse. The EEG showed just that; … Continue reading EEG results- Still seizure free!
I was forced to take a day off of PiYo for an EEG today. This is the 24 hour test where 24 electrodes are placed on my head for 24 hours to track and record brain wave patterns. The abnormal patterns show problems,which in my case are seizures. I always dread having this done, but … Continue reading Tracking my brain wave patterns for 24 hours
It wasn’t easy but we made it through another year of this pandemic! I hope everyone stays safe tonight and has a happy new year! I hope 2022 will bring good things, maybe a new job for me, and even better, an end to the pandemic. Please stay safe tonight! Happy 2022!