This weekend I was finally trusted to spend two nights at home by myself. It wasn't safe for me to stay alone before in case I had a seizure, but being over three years seizure free, I earned the trust to spend a weekend by myself. I wasn't alone, I had my dogs. I spent … Continue reading Two days of independence
Check this out: Stanford researchers listen for silent seizures with "brain stethoscope" that turns brain waves into sound This is an article about this pretty awesome thing neurologists at Stanford are developing that allows doctors and nurses to hear a seizure. It's like an EEG but instead, except EEGs can't always read every seizure because not … Continue reading The “brain stethoscope”
My psychiatrist and I decided to test something this week, since I have been telling him that I'm very impulsive sometimes and I'm sleepy all day, every day. This, added to my concentration and memory problems make me loose my patience, especially when I'm at my tutoring job. While I was telling him about this … Continue reading More Ritalin
Today, International Epilepsy Day, I had my first appointment of 2018 with my neurologist. Epilepsy Day is celebrated on the second Monday of February to celebrate the strength of those affected by epilepsy and raise awareness. Apart from talking about the blackout we had last night where about six towns lost power because of an … Continue reading Happy #EpilepsyDay 2018!
Tomorrow I will have electrodes placed on my scalp to read electrical signals in my brain. It sounds weird and it is, but it's for a good cause. It's an EEG to find out if those weird episodes I had when I couldn't find the right word are seizures. I had this done before in … Continue reading Another EEG
I was reading a little bit about different kinds of seizures, trying to see if those episodes I have had could have been a seizure. It's just for my curiosity because I will know after I get the results from my EEG on the 24th. I thought it might have been an Absence Seizure, also … Continue reading Trying to understand those episodes
I don't remember what else happened on April 8, 2015, I just remember that aura and that seizure. I remember my legs and arms shaking, and wanting to make it stop but not being able to do that. I remember my mother being there, sitting next to me on my bed. Today, Saturday April 8, … Continue reading Two years seizure free!!!
Have you ever heard of application stalking? I hadn't, I don't even know if it's a thing, but I think one of my cellphone apps is stalking me. No, really, I know I sounds ridiculous or paranoid, but it's true. This app is supposed to be helping me, but it's taking it to a very … Continue reading Seizure app is stalking me
Tonight I had quite a scare. I was at a school activity with my parents and suddenly I felt dizzy, like something wasn't right. I looked inside my purse for my anti-seizure medicine, the same medicine we had been fighting with the health insurance to let me have. I looked, my mother looked, it wasn't … Continue reading Lesson learned: don’t leave home without checking you have your medicine