This week, being the week before Easter, I thought I would be able to rest and relax. I was hoping to go to the beach, the movies and maybe even have a lazy day just staying home all day. The week didn't turn out this way. Begging with having to go get blood drawn on … Continue reading Easter break
Today, International Epilepsy Day, I had my first appointment of 2018 with my neurologist. Epilepsy Day is celebrated on the second Monday of February to celebrate the strength of those affected by epilepsy and raise awareness. Apart from talking about the blackout we had last night where about six towns lost power because of an … Continue reading Happy #EpilepsyDay 2018!
After learning about Embrace, the epilepsy smart watch, I saw there was an app similar to that for the Apple Watch. Since then I have been looking for the app, and finally found it as well as many others for iPhone. The 10 best epilepsy apps They sound great but they remind me of that … Continue reading SeizAlarm and other seizure and epilepsy alarm apps
There's a new smartwatch on the market called Embrace smart watch. The thing that makes this watch different from other smart watches and caught my attention is that it tracks seizures. This new watch which has just been cleared by the FDA, has been tested on patients and collected over 6530 hours of data, during … Continue reading Embrace smart watch: seizure tracking and epilepsy management
Two years ago Unstoppable María started to grow, trying to reach a larger audience. Find un, friend us We were still pretty new to the blogging world but t decided to try to also navigate the web outside of WordPress, reaching places like Facebook, Twitter and even YouTube, among others. It was a lot of … Continue reading Growing on Pinterest
Having epilepsy is not easy, but I have learned that I have to be brave when talking about it, I have to bring it up and I have to tell people. I bring it up and I'm not afraid to because that's just a part of my new normal, living with epilepsy. I know people … Continue reading Start the conversation
"My Shot at Epilepsy" is this year's challenge to raise money for Epilepsy Awareness month. Participants are asked to take a picture or video of themselves in "My shot pose" (arm raised in the air, index finger pointing up), making a donation to MyShotAtEpilepsy .org and sharing it on social media, tagging friends to donate … Continue reading My Shot at Epilepsy
My bad, I didn’t give November the welcome it deserves being a very important month. No, I’m not talking about thanksgiving, I’m talking about Epilepsy Awareness Month. This doesn’t mean that we need to take extra care of our epilepsy, we have to do that all year, but share our knowledge and news about epilepsy. … Continue reading Epilepsy Awareness Month 2017
I stopped my monthly count once I reached 2 years of being seizure free but today marks two and a half years seizure free and I think that deserves a recognition. It's not just two years anymore, it's over two years and I am so proud of that. There have been challenges since April like … Continue reading Two years and a half
My electroencephalogram was removed today. This process, just like gluing it to my head yesterday, didn't hurt one bit but it was a lot faster. I'm not sure what the technician put on my hair to make it all come out, but my head was really sticky, like I had way too much hair gel. … Continue reading After the EEG
Like I said yesterday, today I was getting an EEG. I had 24 electrodes glued and taped to my head. These are all connected to a recorder that I'm have to carry around like a purse, except it's not really that cute. Each of the cables from the electrodes is a different color and that's … Continue reading Electroencephalogram
Tomorrow I will have electrodes placed on my scalp to read electrical signals in my brain. It sounds weird and it is, but it's for a good cause. It's an EEG to find out if those weird episodes I had when I couldn't find the right word are seizures. I had this done before in … Continue reading Another EEG
After reading Becoming Comfortable with "My" Epilepsy: Strategies that Patients Use in the Journey from Diagnosis to Acceptance and Disclosure I think it's important to recognize that first, epilepsy is not an easy thing to deal with and that we all have different methods of coping with it. The first time I remember being told … Continue reading The first time I heard I have epilepsy
Thinking about how to celebrate #epilepsyday on Monday, February 13. If you also have a story to tell, share it. http://www.epilepsy.com/make-difference/get-involved/international-epilepsy-day
I keep thinking it is already the end of February, I really don't know why I keep speeding up time, but during the other 7 days of this month I have been thinking "oh god, I missed it, I forgot to celebrate one more month seizure free". I didn't miss it, it's today and I … Continue reading Only two more months!!!