EEG results- Still seizure free!

I got my EEG results today. I wanted the results to show that there was absolutely no seizure activity anymore so I could be taken off the anti seizure medication. I knew that wasn’t going to happen so I just hoped for something more realistic like it not getting worse. The EEG showed just that; … Continue reading EEG results- Still seizure free!

Tracking my brain wave patterns for 24 hours

I was forced to take a day off of PiYo for an EEG today. This is the 24 hour test where 24 electrodes are placed on my head for 24 hours to track and record brain wave patterns. The abnormal patterns show problems,which in my case are seizures. I always dread having this done, but … Continue reading Tracking my brain wave patterns for 24 hours

Seizure First Aid Ready

I just found the best online certification that I want all my family and friends to get, just in case. This free, online certificate is a 30 minute course that “educates the public on the Epilepsy Foundation’s basic procedures for responding to someone having a seizure.” If you complete the course you receive a certificate … Continue reading Seizure First Aid Ready

Vaccinated and seizure free!

I was very excited about today, April 8, 2021. This is a very important day to me; it’s like a second birthday because today I celebrate being one more year seizure free. Today I am officially six years seizure free! On top of that, I got my second Covid19 vaccine this afternoon. I think that … Continue reading Vaccinated and seizure free!

Five years seizure free!

This morning I had an appointment with my neurologist over the phone. I was anxiously waiting for this appointment because today he would give me the results of the EEG I had in December. He didn’t mention anything at first, which I was sure was a good sign, but I still wanted to know so … Continue reading Five years seizure free!

My latest electroencephalogram

When my neurologist tells me I need to get another electroencephalogram, I feel a little anxious. I don’t like the thought of having cables glued to my scalp for a whole day and not being able to do anything but stay home, anyway I have to get the EEG. They use this to detect electrical … Continue reading My latest electroencephalogram

5 years seizure free!

I made it another year! I’m five years seizure free! This would be a great reason to go out for dinner to celebrate and we have on past years but sadly we can’t this year. The best and safest way to celebrate is staying home but this doesn’t stop me from being incredibly happy! Five … Continue reading 5 years seizure free!

Medications and hot weather

Yesterday I went to see my neurologist but it was just a routine appointment. Like always he was happy to hear that nothing has happened, no seizures. I did have to talk to him about an incident I had last night with my pills. I keep all ten of them in a weekly pill container … Continue reading Medications and hot weather

Four Years Seizure Free!

I can finally say it, I am four years seizure free! Thanks mostly to my wonderful neurologist for finding the right medication, keeping me on it, Sonexus Health Pharmacy for helping me get the medicine, and everyone around me for making sure I have my medicine. It's just incredible, literally, I can't believe I've made … Continue reading Four Years Seizure Free!

Epilepsy Day 2019

I know It was yesterday but it's never to late to try to raise awareness, especially for something as important to me as epilepsy. So this year I would like to share this quiz, which I was very surprised and happy to see BuzzFeed taking a part in Epilepsy Day. What do you know about … Continue reading Epilepsy Day 2019

It has been a very long time since I’ve read a book so captivating

Yesterday I realized that for the first time I missed an appointment with my neurologist earlier this month. I still don't understand how that could happen, those appointments are the most important ones, at least for me. I'm still wondering why they didn't call me from his office to confirm the day before like they … Continue reading It has been a very long time since I’ve read a book so captivating

Last post of 2018

As we wait anxiously for the end of 2018 and celebrate the beginning of 2019, I was feeling positive and excited for this new beginning. I was baking brownies for everyone when I couldn't answer what I was being asked. I understood the question, it was how long We had to bake the brownies but … Continue reading Last post of 2018