My bad, I didn’t give November the welcome it deserves being a very important month. No, I’m not talking about thanksgiving, I’m talking about Epilepsy Awareness Month. This doesn’t mean that we need to take extra care of our epilepsy, we have to do that all year, but share our knowledge and news about epilepsy. … Continue reading Epilepsy Awareness Month 2017
This morning I had an appointment with my neurologist to discuss those episodes I have had and the result of the EEG. I'll be honest with you, I was terrified that he would say they found something weird in my brain activity meaning he would need to increase the epilepsy medication dose and I was … Continue reading EEG results are in
Like I said yesterday, today I was getting an EEG. I had 24 electrodes glued and taped to my head. These are all connected to a recorder that I'm have to carry around like a purse, except it's not really that cute. Each of the cables from the electrodes is a different color and that's … Continue reading Electroencephalogram
I want to stay as informed as I can about epilepsy, living with epilepsy for five years now, but some of the information can be a little scary, sometimes true, but other times scary. I was just reading about the growing number of people with epilepsy (Number of People with Epilepsy in the United States … Continue reading Scary news about epilepsy
After reading Becoming Comfortable with "My" Epilepsy: Strategies that Patients Use in the Journey from Diagnosis to Acceptance and Disclosure I think it's important to recognize that first, epilepsy is not an easy thing to deal with and that we all have different methods of coping with it. The first time I remember being told … Continue reading The first time I heard I have epilepsy
Engineers are developing hardware that could predict and help prevent epileptic seizures through a seizure-prediction algorithm. Using these algorithms, the hardware would send signals to the electrodes in the brain predicting seizures in real time and apply electrical stimulation, preventing the seizures. I still can't believe they were able to come up with this and that … Continue reading Seizure prediction hardware
I knew this day was coming but I didn't think it would be now, I thought I had at least one month, and I wasn't sure how I felt about it. Happy, scared or just nervous? But today I got the ok. I was at my 6 month visit to the neurologist and like always … Continue reading Ready to drive?
There is no way I can or would ever want to deny that I now have epilepsy. This has become one of the themes of this blog, I like sharing news I find interesting or are important about epilepsy to help other patients and to make people aware of this, but I want people to … Continue reading What is epilepsy?
First I will say that as of yesterday I am I year and 7 months seizure free! Five months to go! There were other, more important things going on. Because of these, I did not get to celebrate this time, but it's ok. I'm still recovering from what happened yesterday. I woke up at 7:30 … Continue reading November 8, 2016
In November, we don't only celebrate Thanksgiving , but it's also National Epilepsy Month, during which all the epilepsy advocates dedicate the month to educating people on seizures and epilepsy. This year, epilepsy advocate, Greg Grunberg has teamed up with Sunovion Pharmaceuticals to create the social media campaign #MyEpilepsyHero. This campaign invites people to share … Continue reading #MyEpilepsyHero
Today, September 8th, 2016 we celebrate 17 months, seventeen seizure free months . It's been one year and 5 months! Only 7 months left to the full two years!!!! As it turns out my parents wanted to go out to dinner tonight, I didn't want to because I had been working from home and doing homework … Continue reading 17 months!
I have been trying to keep my promise of staying active and going to the gym and I have even been making my own workout routines; today I made three new ones, it's time to change. But yesterday I finally decided to be brave and go to a class I had been wanting to go … Continue reading No pain, no gain, 1 year and 4 months!
The first time I went to the neurologist here in Puerto Rico I was given some rules, thing I can't do when living with epilepsy. Some of these I can do now that I have been able to control my epilepsy for so long, others I still need to reach the two years, and there … Continue reading What’s for lunch?
I had just arrived at work this morning and I was reading an article about Uber in Puerto Rico; is it good, not good? Now suddenly the taxi drivers are good? I was hoping to get to the part where it made sense but then I felt dizzy. My head was spinning and that scared … Continue reading 15 months seizure free!
Earlier today I found out that apparently no health insurance wants to cover epilepsy medicine. I visited my neurologist's office this afternoon to ask about the justification we asked him to write for me, the one so I would be accepted back into my mother's health insurance coverage. His secretary didn't remember seeing it but … Continue reading I have a problem and you’re not helping