I did it again, I controlled my seizures for another year! I am now nine years seizure free! Nine years is a lot and every day that goes by without a seizure, it becomes less likely that I will have another one. I will know better what the chances are when I get the EEG … Continue reading Nine years seizure free!!!
Category: TBI
It’s March again, that means it’s Brain Injury awareness month and it’s very important that we each understand or are aware of what a brain injury is, that in can affect anyone at anytime, and how to protect ourselves and others. It’s never too late to learn. Bellow is the link to my Brain Injury … Continue reading Happy Brain Injury Awareness Month
I had my 6 month appointment with my neurologist today, and just like for the last eight years, everything was fine with my epilepsy. His first question was the same as always, any seizures? And my answer was also the same as in the past, no! When I told him about my new job, I … Continue reading Another successful visit to the neurologist
I submitted my story for the Epilepsy Foundation last week. I was going to wait until they shared it on their website and Facebook but, since that hasn’t happened yet, I guess I’ll have to post it myself: I didn’t understand what they were telling me when my family told me I had epilepsy. How? … Continue reading Changing my epilepsy story
This year for Epilepsy Awareness Month, the Epilepsy Foundation of America are asking un to share our story with epilepsy, whatever our experience with epilepsy is in order to end the stigma. Every year they ask for stories and I always think about writing mine, but I never do it. That ends this year. I … Continue reading Change Our Epilepsy Story
Yesterday I gave running at the beach another shot. I went in the morning again so the sun wasn’t that bad but it didn’t rain this time so it was hot. It was also very different because it wasn’t the same beach. This beach has suffered a lot more erosion so I either had to … Continue reading Saturday morning run
As usual, I was very excited about my appointment to see my neurologist for my 6 month visit. His first question, as usual, was if I had had any seizures. He assumed I hadn’t since I had not called him but he still has to ask and my answer was obviously no, no seizures. I … Continue reading Another neurologist appointment
Over the last eleven years I have heard bits and pieces from different people of what really happened the night I got ran over. Last weekend, when two of my friends from college visited Puerto Rico, they told me what they remember from that night. Apparently, I was supposed to meet them at one of … Continue reading My friends told me about the night of my accident
It has been eight years since my last seizure. That’s 96 months,about 417 weeks, 2,920 days and over 70,000 hours my body has been working, along with my medications, to keep my brain’s electrical rhythms in balance. Being seizure free I have been able to travel, work two jobs, and exercise at least 5 days … Continue reading Eight years seizure free!
On March 29, 2015 I decided to share the journey I had been on for three years. I was scared and a little insecure, but today, nine years later I’m proud to say I have lost some of that fear and insecurity. It’s still difficult putting myself out there and waiting to see if people … Continue reading Nine years later
To begin March, I would like to remind everyone that it’s Brain Injury Awareness Month. I just realized that in the last couple of years I forgot to celebrate or acknowledge it, not posting anything about it in March. However it is important to me to try to make my audience, however small it may … Continue reading Brain Injury Awareness Month
February 13, 2023 is International Epilepsy Day, a day that provides “a platform for people with epilepsy to share their experiences and stories with a global audience.” This is important because epilepsy is “one of the world’s oldest known medical conditions”, there is still misunderstanding, fear, and reluctance to learn and talk about it. This … Continue reading International Epilepsy Day 2023
I went for my first appointment of the year with my neurologist. I always like to go with someone in case he says something that I need to remember, gives me instructions or anything that someone else needs or should hear in case I forget. Today had to go by myself and I was a … Continue reading Big milestone at the neurologist
