I’m happy to say I got to week seven of the eight week PiYo/T25 Hybrid program.
My TBI was officially one decade ago. When I think about it like that, a whole decade, it seems like an eternity but 10 years is a long time, even if sometime it may not seem that way. A lot has happened during these last ten years, not just my recovery. Ten years ago, I … Continue reading Ten years after my TBI
As of yesterday, April 8, 2022, I am officially seven years seizure free! I didn’t have time to write a celebratory blog post like I do every year but that doesn’t mean I was not happy of telling everyone I could about it. I almost thought I didn’t make it earlier this week when because … Continue reading 7 years seizure free!
The FDA just approved the sale of lacosamide tablets, which is the generic name for the anti-seizure medication, Vimpat. This is the medication that finally controlled my seizures and the one that I had trouble getting because of its cost. I hope that now that the FDA approved the sale of lacosamide it will be … Continue reading Lacomaside (Generic Vimpat) was approved by the FDA
I got my EEG results today. I wanted the results to show that there was absolutely no seizure activity anymore so I could be taken off the anti seizure medication. I knew that wasn’t going to happen so I just hoped for something more realistic like it not getting worse. The EEG showed just that; … Continue reading EEG results- Still seizure free!
I was forced to take a day off of PiYo for an EEG today. This is the 24 hour test where 24 electrodes are placed on my head for 24 hours to track and record brain wave patterns. The abnormal patterns show problems,which in my case are seizures. I always dread having this done, but … Continue reading Tracking my brain wave patterns for 24 hours
It wasn’t easy but we made it through another year of this pandemic! I hope everyone stays safe tonight and has a happy new year! I hope 2022 will bring good things, maybe a new job for me, and even better, an end to the pandemic. Please stay safe tonight! Happy 2022!
My brother just published his second book. I can’t say how proud or how happy I am for him. He’s not just a writer, he’s an author. His book, Mangle, is historical fiction set here in Puerto Rico during the Spanish colonization. He has spent years doing research about Puerto Rican history, the Taino Indians, … Continue reading My brother published his second book
I made up my mind yesterday, I was going to continue doing the Insanity workout program today. I even did the fit test yesterday so I was ready to start and I was even going to be able to do it earlier that usual. Everything seemed to be in place, except the power went out … Continue reading Who would have thought nine years ago I’d be doing this today?
After three months and a half, I’m almost at the end of Insanity Max:30. With only two weeks left, I can’t help but think back to the moment I decided to start this and wonder, what was I thinking? I didn’t really know what I was getting myself into, but I’m glad I didn’t because … Continue reading Just two weeks to go!
In March I got the big surprise that the pharmacy that had been providing me with both anti epilepsy medication for the past six years, would no longer be able to help me with the most expensive one of the two medicines I need. Why? Because suddenly my health insurance decided to provide coverage for … Continue reading I couldn’t afford to control my seizures anymore
I did it again! I finished another month of Shaun T’s crazy workout programs. But that was only the first month of this program, I still have three moths to go. I have to be optimistic and think that I can do it because if I don’t, I don’t think I will be able to … Continue reading One month of Insanity Max: 30
Today marks nine years since my TBI. Some say it’s kind of my birthday but I’m not sure that’s what it is; it caused a new beginning, that’s for sure, but I don’t feel like it’s appropriate to say it’s birthday. Birth is a happy moment and there was nothing happy about this day nine … Continue reading Nine years
Yesterday I get a bombshell dropped on me, the pharmaceutical company that has been providing me my epilepsy medicine for over four years won’t cover my most expensive medicine anymore.