Out of everything that happened in 2016, the best thing was that I didn't have any seizures in 2016. Now I have been seizure free for so long I forgot that yesterday marked my 21st month seizure free!!! That makes one year and nine months seizure free, which means I only have 3 months left … Continue reading 21 months!!!
Tag: epilepsy
There is no way I can or would ever want to deny that I now have epilepsy. This has become one of the themes of this blog, I like sharing news I find interesting or are important about epilepsy to help other patients and to make people aware of this, but I want people to … Continue reading What is epilepsy?
First I will say that as of yesterday I am I year and 7 months seizure free! Five months to go! There were other, more important things going on. Because of these, I did not get to celebrate this time, but it's ok. I'm still recovering from what happened yesterday. I woke up at 7:30 … Continue reading November 8, 2016
In November, we don't only celebrate Thanksgiving , but it's also National Epilepsy Month, during which all the epilepsy advocates dedicate the month to educating people on seizures and epilepsy. This year, epilepsy advocate, Greg Grunberg has teamed up with Sunovion Pharmaceuticals to create the social media campaign #MyEpilepsyHero. This campaign invites people to share … Continue reading #MyEpilepsyHero
I have a pretty cool epilepsy t-shirt, but I saw this today shared by Wearing Purple for my Love, on Facebook and I thought it was just awesome. I think these epilepsy t-shirts help show that epilepsy is nothing to mess with, but if we're strong, we can beat it. I think the force can help … Continue reading May the force be with us
It has been a long time since the last time I got confused taking my anti-epileptic medicine which has become a routine, but this morning I overslept a little bit. I woke up at nine, which is fine because it really doesn't matter when I tale the medicine, as long as it's sometime between 8 … Continue reading Another anti-epileptic meds confusion
Here is more information about SUDEP (Sudden Unexpected Death in Epilepsy) I think everyone with epilepsy or people who know a patient of epilepsy should read. I know there are people who don't take epilepsy seriously and I want to help spread the message to help people stop their seizures. It can be done! #AimForZero
Driving again is something that really worries me, I think I'm more scared now than when I was 16; then I was just excited. I wanted the freedom to go where I wanted when I wanted. I do want this again, but I think I will always be scared of having a seizure, especially if … Continue reading Will I be able to drive with epilepsy?
Today, September 8th, 2016 we celebrate 17 months, seventeen seizure free months . It's been one year and 5 months! Only 7 months left to the full two years!!!! As it turns out my parents wanted to go out to dinner tonight, I didn't want to because I had been working from home and doing homework … Continue reading 17 months!
I have been trying to keep my promise of staying active and going to the gym and I have even been making my own workout routines; today I made three new ones, it's time to change. But yesterday I finally decided to be brave and go to a class I had been wanting to go … Continue reading No pain, no gain, 1 year and 4 months!
Some of you may remember my anger at the health insurance company, which just made me unsure whether I was going to be able to have my medicine, right? Well for those of you who don't or were not with us at the time, I'll give you a little summary: After my TBI I was … Continue reading Take that health care!
The first time I went to the neurologist here in Puerto Rico I was given some rules, thing I can't do when living with epilepsy. Some of these I can do now that I have been able to control my epilepsy for so long, others I still need to reach the two years, and there … Continue reading What’s for lunch?
Summer is officially over, at least for me. My summer companion and my ride, my mom, started working today. That's it,the two month's went by too fast, as they do every summer and on the end of summer I let myself down. Why? Because on the very first day of August, of this new semester, … Continue reading Keep it up, don’t quit now
I had just arrived at work this morning and I was reading an article about Uber in Puerto Rico; is it good, not good? Now suddenly the taxi drivers are good? I was hoping to get to the part where it made sense but then I felt dizzy. My head was spinning and that scared … Continue reading 15 months seizure free!
Next chapter of how to deal with evil health insurance companies: First we went to pick up the letter my psychologist wrote to explain why I should have a health plan that covers more than just ten percent of my medicine, so they will think about letting me join my mom's health care plan again. … Continue reading Change the way health insurance treats us
Unstoppable María 