Keep it up, don’t quit now

Summer is officially over, at least for me. My summer companion and my ride, my mom, started working today. That's it,the two month's went by too fast, as they do every summer and on the end of summer I let myself down. Why? Because on the very first day of August, of this new semester, … Continue reading Keep it up, don’t quit now

15 months seizure free!

I had just arrived at work this morning and I was reading an article about Uber in Puerto Rico; is it good, not good? Now suddenly the taxi drivers are good? I was hoping to get to the part where it made sense but then I felt dizzy. My head was spinning and that scared … Continue reading 15 months seizure free!

Change the way health insurance treats us

Next chapter of how to deal with evil health insurance companies: First we went to pick up the letter my psychologist wrote to explain why I should have a health plan that covers more than just ten percent of my medicine, so they will think about letting me join my mom's health care plan again. … Continue reading Change the way health insurance treats us

I have a problem and you’re not helping

Earlier today I found out that apparently no health insurance wants to cover epilepsy medicine. I visited my neurologist's office this afternoon to ask about the justification we asked him to write for me, the one so I would be accepted back into my mother's health insurance coverage. His secretary didn't remember seeing it but … Continue reading I have a problem and you’re not helping

Health un-insurance

Remember I talked about having to go on my own for healthcare? Well that is just going great. In one month I used all my medicine coverage quota. Because of this, today I had to pay $730 worth of medicine, and we weren't getting all of them. I still have to get another anti seizure … Continue reading Health un-insurance

These epilepsy drugs

Well, in the current episode of Health Insurance vs. Maria, I am very frustrated. After we found out that, because of my condition, I can still be covered by the same health insurance plan as my mom, we are trying to get me back in. In order to get me back in they need another … Continue reading These epilepsy drugs

Talk about it

In a few hours I will have to start telling people I'm a year older, I already got the dreaded question; how old? Come on!!! Really? I said it, but it just sounds weird saying it. I do feel great because I already went out to celebrate with my favorite food. but tomorrow when I wake … Continue reading Talk about it

Those seizures, and something else

I want to talk to you about a few things tonight: 1- Seizure free for 13 months!!!! That's right, a year and one month! I didn't celebrate yesterday because it was too late when I noticed what day it was, but now I can say I've been seizure free for over a year. 2- My … Continue reading Those seizures, and something else

Lesson learned: don’t leave home without checking you have your medicine 

Tonight I had quite a scare. I was at a school activity with my parents and suddenly I felt dizzy, like something wasn't right. I looked inside my purse for my anti-seizure medicine, the same medicine we had been fighting with the health insurance to let me have. I looked, my mother looked, it wasn't … Continue reading Lesson learned: don’t leave home without checking you have your medicine 

Keeping track of my epilepsy: My Seizure Diary

I really didn't keep track of my seizures, my mother did, she shared that information with my neurologist, and that's about all the knowledge I had about my seizures. As I mentioned before, during my countdown for one year seizure free, I know the date and approximate time because of a text to my friends, … Continue reading Keeping track of my epilepsy: My Seizure Diary

Prince: Another strong voice for epilepsy

As the day has gone by, I've seen a lot of articles and news about Prince, but there was one thing that really got my attention. We all now he knew how to get people's attention, in his songs, videos, concerts, everywhere. However, he kept his personal life pretty private, but he shared one secret … Continue reading Prince: Another strong voice for epilepsy

Puerto Rican Epilepsy Society is involved in the Walgreens 5K

Today I met the president of the board or directors of Sociedad Puertorriqueña de Epilepsia or Puerto Rican Epilepsy Society which I had mentioned before. My boss had told me I'd have the chance to meet them, and that day came today. It was great, meeting someone with such an important position who works to help people … Continue reading Puerto Rican Epilepsy Society is involved in the Walgreens 5K

Good News Monday!

My first good news of today, one of my doctors told me he saw the lab results I sent him and he said they're great. I don't want to get ahead of myself because he really didn't say much more, but from his reaction I don't think there was anything wrong. Yay! Second, after I … Continue reading Good News Monday!

I call this a victory

Today we had to go all the way to the health care store to argue my case, and I was pumped to argue my case and fight.  We got there, and the place was empty, it was Thursday afternoon, but we still had to wait because they only had one or two people helping customers. … Continue reading I call this a victory

The battle continues- Day 3

Well, the health insurance still hasn't approved my request for the anti-seizure medicine. My epilepsy won't wait for them to decide to approve to help pay for my medicine. If I didn't have an angel watching over me at the pharmacy, I would be in crisis mode, which could cause a seizure. This is totally … Continue reading The battle continues- Day 3