Last night, as I was ready to go to bed, I began to worry I might have forgotten to get labs done for this morning’s appointment with my neurologist. I calmed down when I realized that I didn’t have to bring him any results this time, just good news that I am still seizure free. … Continue reading Great news from the doctor
Tag: TBI
I was not sure this day would come, but I made it! As of today, April 8, 2025, I have been seizure free for a decade! It’s a little unbelievable that it’s finally official, 10 whole years! It’s still scary, but I made it to a decade and I’m so proud of myself! This deserves … Continue reading Ten Years Seizure Free!
I did it again, I controlled my seizures for another year! I am now nine years seizure free! Nine years is a lot and every day that goes by without a seizure, it becomes less likely that I will have another one. I will know better what the chances are when I get the EEG … Continue reading Nine years seizure free!!!
It’s March again, that means it’s Brain Injury awareness month and it’s very important that we each understand or are aware of what a brain injury is, that in can affect anyone at anytime, and how to protect ourselves and others. It’s never too late to learn. Bellow is the link to my Brain Injury … Continue reading Happy Brain Injury Awareness Month
Happy 2024! I hope everyone’s new year is going well so far. I’m looking forward to what this year has to offer because, like I said in my last post, I started a few things in 2023 that I wish to continue and hopefully finish this year, like my book. I may have been distracted … Continue reading Happy New Year 2024!
On March 29, 2015 I decided to share the journey I had been on for three years. I was scared and a little insecure, but today, nine years later I’m proud to say I have lost some of that fear and insecurity. It’s still difficult putting myself out there and waiting to see if people … Continue reading Nine years later
They day finally came, I was able to get my hand on Lacosamide or generic Vimpat, here in Puerto Rico. First of all, I would like to acknowledge my mom’s genius mind for suggesting we try Sam’s Club pharmacy instead of Walgreens, where they kept telling us it wasn’t available in Puerto Rico yet. When … Continue reading I got Lacosamide in Puerto Rico!
So now there’s only five days left of the PiYo/T25 workout program. From now until Saturday it’s going to be a piece of cake because I did the most difficult video for the last time today. As tired as I am from that 50 minute PiYo video, I couldn’t help but smile when I realized … Continue reading Less that one week left!
As of yesterday, April 8, 2022, I am officially seven years seizure free! I didn’t have time to write a celebratory blog post like I do every year but that doesn’t mean I was not happy of telling everyone I could about it. I almost thought I didn’t make it earlier this week when because … Continue reading 7 years seizure free!
The FDA just approved the sale of lacosamide tablets, which is the generic name for the anti-seizure medication, Vimpat. This is the medication that finally controlled my seizures and the one that I had trouble getting because of its cost. I hope that now that the FDA approved the sale of lacosamide it will be … Continue reading Lacomaside (Generic Vimpat) was approved by the FDA
I got my EEG results today. I wanted the results to show that there was absolutely no seizure activity anymore so I could be taken off the anti seizure medication. I knew that wasn’t going to happen so I just hoped for something more realistic like it not getting worse. The EEG showed just that; … Continue reading EEG results- Still seizure free!
In March I got the big surprise that the pharmacy that had been providing me with both anti epilepsy medication for the past six years, would no longer be able to help me with the most expensive one of the two medicines I need. Why? Because suddenly my health insurance decided to provide coverage for … Continue reading I couldn’t afford to control my seizures anymore
Today marks nine years since my TBI. Some say it’s kind of my birthday but I’m not sure that’s what it is; it caused a new beginning, that’s for sure, but I don’t feel like it’s appropriate to say it’s birthday. Birth is a happy moment and there was nothing happy about this day nine … Continue reading Nine years
Yesterday I get a bombshell dropped on me, the pharmaceutical company that has been providing me my epilepsy medicine for over four years won’t cover my most expensive medicine anymore.
Unstoppable María 