Last night, as I was ready to go to bed, I began to worry I might have forgotten to get labs done for this morning’s appointment with my neurologist. I calmed down when I realized that I didn’t have to bring him any results this time, just good news that I am still seizure free. … Continue reading Great news from the doctor
Category: epilepsy
I was not sure this day would come, but I made it! As of today, April 8, 2025, I have been seizure free for a decade! It’s a little unbelievable that it’s finally official, 10 whole years! It’s still scary, but I made it to a decade and I’m so proud of myself! This deserves … Continue reading Ten Years Seizure Free!
It was finally time to discuss my EEG results with my neurologist. I was really looking forward to this appointment hoping for amazing results, results that showed absolutely no seizure activity in my brain. I know that was pretty farfetched, but after my EEG two years ago, my neurologist said there was less seizure activity … Continue reading 2024 EEG Results
It had been two years since my last electroencephalogram so as much as I didn’t want to, it had to be this year. Even though I know I need to do this, I dread every time my neurologist says I need another one, but he’s right, it had been two years. Two years is a … Continue reading Time for another EEG
My life changed drastically so many years ago today, 12 to be exact, yet this day is still so important to me. It was on this day that I showed that I wasn’t giving up, no matter what happened. It wasn’t something conscious, I don’t remember it, but my body didn’t give up that night, … Continue reading 12 years
I did it again, I controlled my seizures for another year! I am now nine years seizure free! Nine years is a lot and every day that goes by without a seizure, it becomes less likely that I will have another one. I will know better what the chances are when I get the EEG … Continue reading Nine years seizure free!!!
I had my 6 month appointment with my neurologist today, and just like for the last eight years, everything was fine with my epilepsy. His first question was the same as always, any seizures? And my answer was also the same as in the past, no! When I told him about my new job, I … Continue reading Another successful visit to the neurologist
I submitted my story for the Epilepsy Foundation last week. I was going to wait until they shared it on their website and Facebook but, since that hasn’t happened yet, I guess I’ll have to post it myself: I didn’t understand what they were telling me when my family told me I had epilepsy. How? … Continue reading Changing my epilepsy story
This year for Epilepsy Awareness Month, the Epilepsy Foundation of America are asking un to share our story with epilepsy, whatever our experience with epilepsy is in order to end the stigma. Every year they ask for stories and I always think about writing mine, but I never do it. That ends this year. I … Continue reading Change Our Epilepsy Story
As usual, I was very excited about my appointment to see my neurologist for my 6 month visit. His first question, as usual, was if I had had any seizures. He assumed I hadn’t since I had not called him but he still has to ask and my answer was obviously no, no seizures. I … Continue reading Another neurologist appointment
It has been eight years since my last seizure. That’s 96 months,about 417 weeks, 2,920 days and over 70,000 hours my body has been working, along with my medications, to keep my brain’s electrical rhythms in balance. Being seizure free I have been able to travel, work two jobs, and exercise at least 5 days … Continue reading Eight years seizure free!
On March 29, 2015 I decided to share the journey I had been on for three years. I was scared and a little insecure, but today, nine years later I’m proud to say I have lost some of that fear and insecurity. It’s still difficult putting myself out there and waiting to see if people … Continue reading Nine years later
February 13, 2023 is International Epilepsy Day, a day that provides “a platform for people with epilepsy to share their experiences and stories with a global audience.” This is important because epilepsy is “one of the world’s oldest known medical conditions”, there is still misunderstanding, fear, and reluctance to learn and talk about it. This … Continue reading International Epilepsy Day 2023
I went for my first appointment of the year with my neurologist. I always like to go with someone in case he says something that I need to remember, gives me instructions or anything that someone else needs or should hear in case I forget. Today had to go by myself and I was a … Continue reading Big milestone at the neurologist
I thought everything was perfect as long as I took my anti convulsive medications, didn’t drink alcohol and slept eight hours every night. I forgot that I shouldn’t gain weight, at least not too much. Gaining weight affects my medication levels; if they are too low it could lead to a seizure. I have only … Continue reading More workouts and no more snacking
Unstoppable María 