I was not sure this day would come, but I made it! As of today, April 8, 2025, I have been seizure free for a decade! It’s a little unbelievable that it’s finally official, 10 whole years! It’s still scary, but I made it to a decade and I’m so proud of myself! This deserves … Continue reading Ten Years Seizure Free!
Tag: seizure free
Today I had my yearly January visit to the neurologist and just like I suspected, it was packed. Mondays are always really busy because both doctors are seeing patients and they are also running different tests such as EEGs on patients. I waited in the hallway and tried to calm unhappy patients, telling them that … Continue reading January 2025 visit to the neurologist
Today I want to be very thankful that my dog, Indy, is doing a lot better. She went back to the veterinarian yesterday and she is doing well. Her hip is doing a lot better but her left leg is still tied up in a cast. She can’t stretch it but she wants to walk … Continue reading Very thankful to be in a happy place again
It was finally time to discuss my EEG results with my neurologist. I was really looking forward to this appointment hoping for amazing results, results that showed absolutely no seizure activity in my brain. I know that was pretty farfetched, but after my EEG two years ago, my neurologist said there was less seizure activity … Continue reading 2024 EEG Results
It had been two years since my last electroencephalogram so as much as I didn’t want to, it had to be this year. Even though I know I need to do this, I dread every time my neurologist says I need another one, but he’s right, it had been two years. Two years is a … Continue reading Time for another EEG
My life changed drastically so many years ago today, 12 to be exact, yet this day is still so important to me. It was on this day that I showed that I wasn’t giving up, no matter what happened. It wasn’t something conscious, I don’t remember it, but my body didn’t give up that night, … Continue reading 12 years
I had my 6 month appointment with my neurologist today, and just like for the last eight years, everything was fine with my epilepsy. His first question was the same as always, any seizures? And my answer was also the same as in the past, no! When I told him about my new job, I … Continue reading Another successful visit to the neurologist
What a year! I don’t even know where to begin. It was a year filled with fun and sometimes not so fun experiences. I started the year with Covid I got during a trip to NYC and Boston. I kept traveling during the year, first to Chicago and then to New York and New Jersey. … Continue reading Bye bye 2023
I submitted my story for the Epilepsy Foundation last week. I was going to wait until they shared it on their website and Facebook but, since that hasn’t happened yet, I guess I’ll have to post it myself: I didn’t understand what they were telling me when my family told me I had epilepsy. How? … Continue reading Changing my epilepsy story
This year for Epilepsy Awareness Month, the Epilepsy Foundation of America are asking un to share our story with epilepsy, whatever our experience with epilepsy is in order to end the stigma. Every year they ask for stories and I always think about writing mine, but I never do it. That ends this year. I … Continue reading Change Our Epilepsy Story
It has been eight years since my last seizure. That’s 96 months,about 417 weeks, 2,920 days and over 70,000 hours my body has been working, along with my medications, to keep my brain’s electrical rhythms in balance. Being seizure free I have been able to travel, work two jobs, and exercise at least 5 days … Continue reading Eight years seizure free!
On March 29, 2015 I decided to share the journey I had been on for three years. I was scared and a little insecure, but today, nine years later I’m proud to say I have lost some of that fear and insecurity. It’s still difficult putting myself out there and waiting to see if people … Continue reading Nine years later
I went for my first appointment of the year with my neurologist. I always like to go with someone in case he says something that I need to remember, gives me instructions or anything that someone else needs or should hear in case I forget. Today had to go by myself and I was a … Continue reading Big milestone at the neurologist
They day finally came, I was able to get my hand on Lacosamide or generic Vimpat, here in Puerto Rico. First of all, I would like to acknowledge my mom’s genius mind for suggesting we try Sam’s Club pharmacy instead of Walgreens, where they kept telling us it wasn’t available in Puerto Rico yet. When … Continue reading I got Lacosamide in Puerto Rico!
My TBI was officially one decade ago. When I think about it like that, a whole decade, it seems like an eternity but 10 years is a long time, even if sometime it may not seem that way. A lot has happened during these last ten years, not just my recovery. Ten years ago, I … Continue reading Ten years after my TBI
Unstoppable María 