Having epilepsy is not easy, but I have learned that I have to be brave when talking about it, I have to bring it up and I have to tell people. I bring it up and I'm not afraid to because that's just a part of my new normal, living with epilepsy. I know people … Continue reading Start the conversation
Tag: Epilepsy Awareness
"My Shot at Epilepsy" is this year's challenge to raise money for Epilepsy Awareness month. Participants are asked to take a picture or video of themselves in "My shot pose" (arm raised in the air, index finger pointing up), making a donation to MyShotAtEpilepsy .org and sharing it on social media, tagging friends to donate … Continue reading My Shot at Epilepsy
My bad, I didn’t give November the welcome it deserves being a very important month. No, I’m not talking about thanksgiving, I’m talking about Epilepsy Awareness Month. This doesn’t mean that we need to take extra care of our epilepsy, we have to do that all year, but share our knowledge and news about epilepsy. … Continue reading Epilepsy Awareness Month 2017
I stopped my monthly count once I reached 2 years of being seizure free but today marks two and a half years seizure free and I think that deserves a recognition. It's not just two years anymore, it's over two years and I am so proud of that. There have been challenges since April like … Continue reading Two years and a half
My electroencephalogram was removed today. This process, just like gluing it to my head yesterday, didn't hurt one bit but it was a lot faster. I'm not sure what the technician put on my hair to make it all come out, but my head was really sticky, like I had way too much hair gel. … Continue reading After the EEG
Like I said yesterday, today I was getting an EEG. I had 24 electrodes glued and taped to my head. These are all connected to a recorder that I'm have to carry around like a purse, except it's not really that cute. Each of the cables from the electrodes is a different color and that's … Continue reading Electroencephalogram
Tomorrow I will have electrodes placed on my scalp to read electrical signals in my brain. It sounds weird and it is, but it's for a good cause. It's an EEG to find out if those weird episodes I had when I couldn't find the right word are seizures. I had this done before in … Continue reading Another EEG
After reading Becoming Comfortable with "My" Epilepsy: Strategies that Patients Use in the Journey from Diagnosis to Acceptance and Disclosure I think it's important to recognize that first, epilepsy is not an easy thing to deal with and that we all have different methods of coping with it. The first time I remember being told … Continue reading The first time I heard I have epilepsy
Thinking about how to celebrate #epilepsyday on Monday, February 13. If you also have a story to tell, share it. http://www.epilepsy.com/make-difference/get-involved/international-epilepsy-day
I keep thinking it is already the end of February, I really don't know why I keep speeding up time, but during the other 7 days of this month I have been thinking "oh god, I missed it, I forgot to celebrate one more month seizure free". I didn't miss it, it's today and I … Continue reading Only two more months!!!
This caught my attention today and I think it's worth sharing: Tomorrow the House of Representatives will vote on the 21st Century Cures Act. I did not know anything about this until today and I'm still learning about this ACT, but as far as I know, this will allow for more research for healthcare. This would … Continue reading 21st Century Cures Act
In November, we don't only celebrate Thanksgiving , but it's also National Epilepsy Month, during which all the epilepsy advocates dedicate the month to educating people on seizures and epilepsy. This year, epilepsy advocate, Greg Grunberg has teamed up with Sunovion Pharmaceuticals to create the social media campaign #MyEpilepsyHero. This campaign invites people to share … Continue reading #MyEpilepsyHero
Today I met the president of the board or directors of Sociedad Puertorriqueña de Epilepsia or Puerto Rican Epilepsy Society which I had mentioned before. My boss had told me I'd have the chance to meet them, and that day came today. It was great, meeting someone with such an important position who works to help people … Continue reading Puerto Rican Epilepsy Society is involved in the Walgreens 5K
My first good news of today, one of my doctors told me he saw the lab results I sent him and he said they're great. I don't want to get ahead of myself because he really didn't say much more, but from his reaction I don't think there was anything wrong. Yay! Second, after I … Continue reading Good News Monday!
Today I was given information about Sociedad Puertorriqueña de Epilepsia, or Puerto Rican Epilepsy Society. I had heard there was one, but when I tried searching for it online, I didn't find anything; so I got really excited when my boss told me she works with them on some projects. She also told me that she would … Continue reading Sociedad Puertorriqueña de Epilepsia and National Walk for Epilepsy
Unstoppable María 