I don't have any pictures right now to prove to you that all that I'm going to say now is true, but it is true and I will get proof, I just don't have the pictures right now. But today, I went with my aunt on a tour where we hiked through the forrest in … Continue reading Cueva Vientos and the war continues
Category: epilepsy
In a few hours I will have to start telling people I'm a year older, I already got the dreaded question; how old? Come on!!! Really? I said it, but it just sounds weird saying it. I do feel great because I already went out to celebrate with my favorite food. but tomorrow when I wake … Continue reading Talk about it
I want to talk to you about a few things tonight: 1- Seizure free for 13 months!!!! That's right, a year and one month! I didn't celebrate yesterday because it was too late when I noticed what day it was, but now I can say I've been seizure free for over a year. 2- My … Continue reading Those seizures, and something else
Tonight I had quite a scare. I was at a school activity with my parents and suddenly I felt dizzy, like something wasn't right. I looked inside my purse for my anti-seizure medicine, the same medicine we had been fighting with the health insurance to let me have. I looked, my mother looked, it wasn't … Continue reading Lesson learned: don’t leave home without checking you have your medicine
I really didn't keep track of my seizures, my mother did, she shared that information with my neurologist, and that's about all the knowledge I had about my seizures. As I mentioned before, during my countdown for one year seizure free, I know the date and approximate time because of a text to my friends, … Continue reading Keeping track of my epilepsy: My Seizure Diary
As the day has gone by, I've seen a lot of articles and news about Prince, but there was one thing that really got my attention. We all now he knew how to get people's attention, in his songs, videos, concerts, everywhere. However, he kept his personal life pretty private, but he shared one secret … Continue reading Prince: Another strong voice for epilepsy
Today I met the president of the board or directors of Sociedad Puertorriqueña de Epilepsia or Puerto Rican Epilepsy Society which I had mentioned before. My boss had told me I'd have the chance to meet them, and that day came today. It was great, meeting someone with such an important position who works to help people … Continue reading Puerto Rican Epilepsy Society is involved in the Walgreens 5K
My first good news of today, one of my doctors told me he saw the lab results I sent him and he said they're great. I don't want to get ahead of myself because he really didn't say much more, but from his reaction I don't think there was anything wrong. Yay! Second, after I … Continue reading Good News Monday!
Today we had to go all the way to the health care store to argue my case, and I was pumped to argue my case and fight. We got there, and the place was empty, it was Thursday afternoon, but we still had to wait because they only had one or two people helping customers. … Continue reading I call this a victory
Well, the health insurance still hasn't approved my request for the anti-seizure medicine. My epilepsy won't wait for them to decide to approve to help pay for my medicine. If I didn't have an angel watching over me at the pharmacy, I would be in crisis mode, which could cause a seizure. This is totally … Continue reading The battle continues- Day 3
My neurologist sent the pharmacy the justification for my need of the anti-seizure medicine yesterday afternoon. The pharmacy didn't get around to getting it to the health insurance until today. They could be excused if they didn't know my need for the medicine was like, yesterday, if we hadn't been asking for it for days. … Continue reading My battle with health insurance- Day 2
Having health insurance is something we have all come to need, but a big pain in the b...ack. I just changed my health insurance coverage because I'm about to turn 26, at which age I can no longer be covered by the same plan as my parents. So as soon as we could, we went … Continue reading Why can’t I have my meds?
I woke up this morning with no intent of getting up. It's Friday, I don't really have anything important today. In my sleepy mind there was nothing special about this Friday, I hadn't been waiting for this day all week, all, 7 other days of this months, or for 12 months. But wait... I HAD! … Continue reading 1 year SEIZURE FREE!
Today I was given information about Sociedad Puertorriqueña de Epilepsia, or Puerto Rican Epilepsy Society. I had heard there was one, but when I tried searching for it online, I didn't find anything; so I got really excited when my boss told me she works with them on some projects. She also told me that she would … Continue reading Sociedad Puertorriqueña de Epilepsia and National Walk for Epilepsy
I never know how to react to certain situations, or how to respond to things people tell me. But as I read in this article, 6 things you should never say to a brain injury survivor, people say the wrong things to a lot of brain injury survivors. This list includes most of those situations … Continue reading What not to say to a brain injury survivor
Unstoppable María 